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February 23rd, 2012

Grave Hep C News… and oh yeah, the Oscars!

The image in my mind has never left me, even after many years of trying, of applying layers of wallpaper to that corner of my mind. I am in someone’s bedroom — it could have been anyone, really — and I am offered a syringe to inject crystal meth. The syringe has been used. I take it. I consider the consequences for a brief moment, but I am cavalier. And very, very high. I use the syringe.

syringeIt wasn’t the threat of HIV that gave me pause. It was hepatitis C, which I knew was serious… and that’s about it. But I can tell you this, now, my friends: More U.S. residents are now dying of hepatitis C complications than HIV-related illnesses, as reported recently by Tim Horn in Hepatitis News.

Within days of using that syringe, maybe two weeks, I become horrifically ill. The acute infection swept through me like a freight train, exhausting me, turning my urine brown, making it impossible to perform routine tasks. Doctors diagnosed it quickly, and then gave me the grave treatment plan: 11 months of interferon, coupled with ribavirin. The interferon, a ferocious chemotherapy, would cause mood swings, deep depression, and would be administered, ironically, by injecting myself with it each week.

Depression is so severe among interferon patients that they do not allow pilots to fly who are being treated with it, for fear they will deliberately crash the plane.

The months I endured with hepatitis C and the treatment protocol remains the worst period of health in my life. The mental side effects were as devastating as the illness. Everything hurt. Everything made me angry. Or want to cry. Or convinced me you were against me. Those eleven months crawled by without mercy.

The good news, thank God, is that the treatment plan worked, and I cleared hepatitis C from my body. There has been no recurrence.

I’ve said that the disease most likely to kill me is addiction, not HIV, and hepatitis C was a terrible by-product of my addiction.

While I am drug-free today and maintaining good health, the report that hepatitis C has overtaken HIV as a cause of death brought up some strong emotions. It reminded me of the insanity of the interferon treatment, and then, of course, the insanity of my drug addiction. And it made me wonder how many of those who are dying of hepatitis C acquired it the same way I did.

My life is filled with unlikely rescues. To have lived with HIV for thirty years and to be here typing on my laptop is amazing. To have thumbed my nose at that fact, and reward my good fortune by sticking needles in my arm, well, that is as alarming and sad to me as it must be to you. It’s tough to feel worthy of the grace that has saved me, again and again. So I’ll simply be grateful to be clean and alive today.

Get tested for hepatitis and get the vaccine for A and B if you have not already been exposed. And should you be an injection drug user, bring your own clean needles where ever you use. You and I both know that, when the choice is a used needle or getting high, all of our good fortune can disappear in a flash.

Mark

p.s. May I sneak back on my HIV criminalization soap box for a moment? (My face-off between a poz man and the sex partner accusing him of not revealing his status has garnered some interesting comments, and the attention of advocates worldwide.) If 26 U.S. States have laws criminalizing the potential exposure of HIV to another person, than why don’t they have laws against exposing someone to hepatitis C, which is now officially more deadly than HIV? Thank you. That will be all.
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On a ridiculously different note, may I say with some pleasure that I always win the Oscar pool. If you are headed to an Oscar party this weekend, by all means, listen up! Here are my predictions. I am including the “little” categories because that is how you rack up points! If you must vary from my experienced guesses, be forewarned: you never win the Oscar pool by going with your passions. This is a game of politics and timing.

artistBEST PICTURE: The Artist. The Descendants had great momentum earlier this year until this adorable gem appeared. The statue has already been engraved.

BEST DIRECTOR: Michel Hazanavicius (The Artist). Your first lesson: when in doubt, choose whatever nominee is attached to the clear Best Picture winner.

BEST ACTOR: George Clooney (The Descendants). George has a supporting statuette already, but the Academy loves the man, and so do I. He will edge out the leading actor from The Artist, who’s name I don’t feel like looking up and spelling out.

BEST ACTRESS: Viola Davis (The Help). Even Meryl wants her to win, for God’s sake.

BEST SUPPORTING ACTOR: Christopher Plummer (The Beginners). Mr. Plummer, in a cozy role in a slight film, benefits from the George Burns rule: give it to the old guy with a long history. And he made a nice acceptance speech at the Golden Globes, which Academy voters see as auditions.

BEST SUPPORTING ACTRESS: Octavia Spencer (The Help). This early favorite of a film will sweep the actress categories. Good for them.

BEST SCREENPLAY: Woody Allen (Midnight in Paris). The more he demurs, the more they love him.

BEST ADAPTED SCREENPLAY: Alexander Payne (The Descendants). A terrific film and a deserving win.

BEST SOUND EDITING: War Horse

BEST SOUND MIXING: Hugo

BEST MAKEUP: The Iron Lady (closely followed by Albert Nobbs).

BEST DOCUMENTARY SHORT: Saving Face

BEST DOCUMENTARY FEATURE: Pina

BEST ANIMATED SHORT: La Luna (Pixar gets its first short-form Oscar in over a decade).

BEST LIVE ACTION SHORT: The Shore. I actually saw these nominees, and would strongly favor Raju from India, but The Shore has bigger names (and influence) attached.

ANIMATED FEATURE: Rango. Surely the most bizarre film to win an Oscar this year. Johnny Depp is smiling.

ART DIRECTION: Hugo

CINEMATOGRAPHY: The Tree of Life. Terrence Malick, the mysterious and cultish director, started as a camera man and his shots still make the Academy swoon.

COSTUMES: Hugo (which will rack up some of these techy categories since it won’t win anything big).

EDITING: The Artist

FOREIGN FILM: A Separation. A brooding, surprising domestic thriller.

SCORE: The Artist

SONG: The Muppets

SPECIAL EFFECTS: Rise of the Planet of the Apes

Enjoy the show! Good luck, Billy!

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3 Responses to “Grave Hep C News… and oh yeah, the Oscars!”

  1. Sean Strub Says:

    February 24th, 2012 at 1:06 am

    Mark,

    Your courage, clarity of thought and beautiful writing continue to enlighten and inspire. Thank you.

    Sean

  2. Subversive Librarian Says:

    February 25th, 2012 at 9:47 am

    Thank you, Mark, for your openness. I knew hep C and interferon were tough, but this brings it home. Now I understand my ex-sponsor a little better.

  3. Sue Says:

    February 25th, 2012 at 10:10 am

    Love

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