Posts Tagged ‘help others’
Wednesday, May 29th, 2013
Every month or so, a group of people in my area host “poz socials,” a house party for people living with HIV. I found myself at one recently, because I thought it was important to make an appearance since becoming a literary superstar.
I was settled into the living room sofa and liked the spot very much. Sharing a couch with regular folk has an air of humility about it, while its angle allowed me to be viewed by a large number of the guests milling about.
I should proceed with caution, I thought. If he is a stalker and I engage him haphazardly, he’ll steal my social security number and soon claim we’re Minnesota’s latest newlyweds.
“Well now, what magazine do you mean…?” I said, and then I smiled demurely. It’s best to display warmth when you are recognized in public. But carry mace.
“The magazine you’re holding in your lap…” he said, “with the cover facing me? I saw some copies on a table at the front door, I think. That’s you, right?”
“Oh, this magazine!” I said, waving it in my hand as if I’d just discovered it, “yes, well, they’re sending me so many you know, boxes of them, I just thought people might appreciate me bringing a few of them to –“
“…and there’s a stack of them in the bathroom, too,” he continued, “which I thought was odd, and outside on the back lawn. Someone laid them across the grass to spell out OZ. Is this magazine about The Wizard of –“
“No! POZ.” I fingered the cover’s masthead like I was teaching the alphabet on Sesame Street. “P-O-Z? POZ. POZ Magazine.”
“Well, it just says ‘OZ’ in the back yard now. I think they had to make room for the lawn chairs.”
This man was irritating me. He hadn’t even begun to ask about my thoughts on fame or on balancing family with my public persona or about Having It All. I became concerned with his comprehension skills.
“I wouldn’t worry about it,” he went on, “it’s sprinkling now so I don’t think anybody is out there anyway.”
“It’s what?” I asked. I scrambled up and dashed outside to retrieve what were now slightly soggy copies of the magazine off the lawn.
I settled for a while on the back patio, carefully dabbing the magazine covers and giving the crowd inside some relief from the excitement of my presence. I wondered if the Kardashians ever had to dry their own magazines. I suddenly realized how very alike we are, those girls and I. Well, maybe not Kim. Unlike her, my sex video was a crystal meth-induced camera phone escapade that I have refused to commercialize. No, Khloe is my true soul mate. The sassy one.
The party’s host, Sebastian, stepped outside.
“Hello, Sebastian. You have a lovely home,” I offered. Graciousness. So important. “I wonder if I might trouble you for some ballpoint pens. The Sharpies I brought are going to bleed if I have to autograph these wet magazines…”
“I was just going to ask you about that,” he said. “The buffet table seems to have been set up for… some sort of signing?” I had arrived early to hang the poster-sized blowup of the cover in just the right spot, scotch taped over Sebastian’s original Keith Haring lithograph. The Haring seemed a tad pretentious anyway.
“Yes, that’s right,” I answered. He had an expression that I clearly mistook for annoyance.
“There are magazines stacked all over the buffet table,” he said.
I raised an eyebrow. “I brought plenty to accommodate the crowd so –“
“There are only fifteen people here…”
“…so they might be able to share with their friends and loved ones,” I finished.
Sebastian breathed a little too strongly through his nostrils for a moment. “If it’s all the same to you,” he said, rather slowly, “I really need the buffet table.”
“You need the buffet table?” This was the first I had heard of this. I bet Khloe has people for this sort of thing.
“Yes,” he said. “I need the buffet table. For the buffet.”
Jealousy is a common response to intense fame. You see it all the time. Well, maybe not you. But I do.
My road to sizzling celebrity began a few months ago, when I was invited to appear on the cover of POZ Magazine because of an essay I had contributed about HIV stigma among gay men. I give full credit to the staff of the publication, for instinctively knowing exactly what the world needs right now.
And if you’re thinking the answer is me, well, that’s lovely and understandable but not really true. What the world needs now is a message of tolerance toward people living with HIV.
Delivered by me.
Negotiations between myself and the publication were heated, I will admit. First they claimed Leibovitz was busy and Scavullo was dead, and then they rejected my request for body painting at the studio to sculpt my abs. Oh, and I had to wear a shirt.
I don’t mean to embarrass anyone, but allow me to share with you portions of the email I received from the POZ editorial team. They responded together, they said, to put a stop to my “playing staff members against one another and telling us each that you liked us best or that a fellow staff person wanted us fired.” Like I would be caught doing that.
They then went on to say that “while we appreciate your enthusiasm for this cover shoot, we don’t believe that having you pictured in the throes of actual stigmata would serve the story or our readership.” My concept was meant to be ironic, although I can’t really explain why and it’s my response to most situations in which I don’t get my way.
“And although we do acknowledge that Carrie is an iconic film about stigma,” the irksome memo continued, “our readers might respond unfavorably to a cover model with a bucket of pig’s blood dumped on their head. People with HIV are sensitive about blood. Even pig’s blood. Your being outfitted in a prom dress does little to minimize the impact.”
They said nothing about the remake of Carrie to be released this fall, and the obvious promotional tie-ins I had outlined in my proposal. Which is all to say that we must stand tall against those who wish to blunt our artistic vision.
Now that the June issue has been released, available everywhere fine periodicals about HIV are available, I’m mulling over the idea of a multi-city tour or better yet, an AIDS benefit in which famous artists recreate my POZ Magazine cover, people like Peter Max or Warhol, and then auction them off. The powers that be at POZ, as you might guess, say this idea is quite impossible for reasons they refuse to enumerate.
I considered all this as the poz social was drawing to a close and I was slipping copies of the issue under the windshield wipers of the cars on the street. Face down, of course, so my face might greet the driver as he settles in his seat. I continued up the neighboring blocks, because good literature appeals to everyone and Sebastian was giving me attitude about the boxes of magazines he claimed were blocking his driveway.
Should you care for a personal appearance at your next gala, by all means contact me. I require the usual fees, plus Perrier water, Intelence, Norvir, Isentress, and Flomax. And please find me a sizable entourage, to do entouragey things with me.
If it’s good enough for Khloe, it’s good enough for me.
All kidding aside, I could not be more humbled and heartened by the response to my POZ Magazine essay on HIV stigma and gay male community. Even if you have read the piece, I would encourage you to visit the comments section on the POZ site — now with over 100 comments that will inspire you, anger you, and break your heart.
Sunday, March 24th, 2013
I have some amazing friends for you to meet.
Beginning two years ago, TheBody.com asked me to produce a series of videos (“A Day in the Life: Keeping Up With Your HIV Meds”) that would profile a person living with HIV, what their day looks like, and how their medication regimen fits into their daily routine. It was a great opportunity to highlight the everyday lives of people living with HIV, but also to let their spirit and passions come through, and show we are whole people — not simply the virus.
The profile subjects came from all walks of life, in various cities around the United States, and their personalities and interests — their families, their hobbies, and even how they became HIV positive — were all I needed for inspiration.
Below are the eleven videos that have been produced to date for the series (an ongoing feature on TheBody.com and they also have an entire resource center about keeping up with your meds). You can watch the videos here, or follow the link in the title to view the post as it appeared on TheBody. They are each less than ten minutes long; just scroll through them below and find a story that sounds like yours — or better yet, hear what the journey of someone completely different from you is like! Are you ready?
Damaries is from South Florida and could not have been more lovely; we laughed a lot during our day together. Her strength is what impressed me most: she did not come to the decision to start HIV medications lightly. She really did her research before she began a regimen. Filming her story was also a great excuse to hit the beach, since she loves to find her peace and tranquility on that gorgeous sand.
Well, first of all, Tree is adorable. So there’s that. He also has an equally adorable dog, who tried mightily to extend his few minutes of fame by sneaking into the camera shots and barking woefully from the other room. For his part, Tree does a great job explaining how he kept his medication regimen despite multiple moves and even being homeless for a brief period. I really like the Brooklyn montage of Tree’s neighborhood at the beginning of the video.
What an elegant woman Eva is. She was so gracious during our day together and had an almost regal sense of self. She really impressed me. Not only did she make peace with the man who infected her many years ago, she became an advocate for all women living with HIV and devoted quite a lot of time to volunteer work. She’s also an avid traveler — I’ve never seen so many magnets from exotic places on one fridge in my life.
What a hoot! Robert (Bobby) Darrow and I were childhood friends, when we both performed in community theater together in Shreveport, Louisiana (we were both newsboys in Gypsy, for all you musical theater queens). As we grew, he always got the good parts and I ended up working the spotlight — shining it on him — but I’m not bitter, I swear! Producing this video was a great chance to honor my lifelong friend for the activism he has done since the beginning of the AIDS epidemic. And it also allowed me to honor theater itself, and how Bobby is now back in the very place he and I so loved when we were kids. This one is special to me.
You’re going to be blown away by the strength of this woman’s convictions — and the strength of her marriage. Brooke learned she was HIV positive during her pregnancy, and not only was her husband completely supportive, he stood by proudly as Brooke became a visible advocate for woman’s health, the importance of HIV testing, and their personal struggle to afford HIV medications so that their baby would have a better chance of being born without HIV. And speaking of babies, guess who steals the show in this video?
Khafre was one of the most immediately spiritual people I met during this series. He has a very strong sense of faith and a commitment to his own spiritual principles. He was also in the midst of organizing a fund raising bike ride across the country to benefit HIV/AIDS services for people of color, and I admired his dedication and pure energy. The time he devoted each day to prayer and meditation was really lovely to observe and capture in the video.
Petra & Efrain could give the other couples in the series a real run for their money for the title of Most Romantic. You can’t help but grin, watching Efrain describe seeing his future wife for the first time at an AIDS conference, where both were community advocates and both were living with HIV. They not only lift up one another during the frustrations of HIV life, they know how to take time to love and enjoy one another, as their salsa demonstration clearly shows.
Tales of triumph over adversity don’t come more dramatic than the story of Fortunata. Not only is she the single, proud parent of a gorgeous daughter (the apple doesn’t fall far from the beauty tree), she had a devastating accident when she was hit by a car walking across the street — and then had to manage her HIV meds along with a host of others while she recuperated. The fact that she relates all this with such grace was amazing to me. I had so much footage of her simply looking ethereal and lovely, the video could have been twice as long.
Anyone who follows my blog — or HIV/AIDS advocacy — knows what a gift Nelson is to our community. He’s been our own Jack LaLanne of HIV, teaching the importance of health, exercise and nutrition since the beginning of the epidemic — the video blogs he did with me on nutrition (where he cleans out my fridge) and exercise (where we hit the gym together) are hilarious and very informative. And, of course, he has a hot body. It might come as some surprise, then, that he’s very modest when it comes to showing it. I had all sorts of shots and angles I wanted to do that would have shown of his physique, and he politely demurred. He also was always focused in our interview on what would apply to regular folks living with HIV, rather than the more privileged among us. In other words, the man is a class act, with a humility that speaks volumes about his integrity and commitment.
I’ve been watching Robert grow as an HIV/AIDS advocate for several years now, since he began POZIAM social network and radio show while still in his twenties. I had fun doing the fast cuts that open his video because I thought it captured the sense of motion and vitality he has. When I become disheartened, wondering where are the next generation of activists on the scene, I remind myself there are people like Robert.
I’ve always been open on my blog about being in recovery from drug addiction, and George — who survived 27 years of street drugs — and I had an immediate connection. He devotes his life today to service for others, whether it is at an AIDS agency or through various addiction activities. In fact, something he said about his recovery during our interview really made sense to me, and I stopped the camera and shared some of my own story. For nearly thirty minutes he let me pour out some of my own fears and challenges, and listened with the attention of a man who has been there. I think his spirit is well-represented in this video.
To watch George’s video, just follow this link to TheBody. This video is so hot-off-the-presses that I’m not able to share it here yet. Follow the link and hear his story.
I learned a lot of each of these people, and I know they represent a tiny fraction of the courage and daily fortitude displayed by people living with HIV every single day. I really want to thank this group for taking me into their homes and lives and allowing me to share their stories with you.
Thanks for watching, and please be well.
Tags: aids, gay, help others, hiv, lipo, physician, recovery, research, Sexuality, testing
Posted in All Other Video Postings, Gay Life, Living with HIV/AIDS, Meth and Recovery, My Fabulous Disease, Prevention and Policy | 1 Comment »
Thursday, November 15th, 2012
Richard is handsome and adorably shy. His sister began emailing me a few months ago, wondering if her brother might enjoy the HIV Cruise Retreat, because he isn’t able to disclose his status comfortably in his fairly small town.
On the last night of the cruise I gave him an award for “Sweetest Backstory,” explaining to the crowd that his cruise ticket was a Christmas gift from his sister, who clearly loves him very much (the awards are really just a silly way to acknowledge various people on the ship). He accepted the award with tears streaming down his face, while dozens upon dozens of new friends applauded heartily.
It is that fellowship, that embrace of our lives and all that we are, that best describes the week-long event on the high seas.
For seven days, I lived in a state of enhanced gratitude. For my life, my health, and for the people who organize the retreat.
Sailing from Ft Lauderdale to various islands of the Caribbean, the Cruise Retreat included more than 200 gay men, women and our supporters. We feasted on non-stop food and the loving embrace of friends old and new.
Along the way, there were games, shore excursions and even budding romances. The protective walls that often surround those of us living with HIV came crumbling down, replaced with new relationships, email addresses and phone numbers. By the time we docked back in Ft Lauderdale, hugs were long and new confidants had been established.
I don’t expect that everyone has the ability to afford the trip, but the message of the event – reach out for support and friendships where ever you might find them – echoes in my mind and heart today.
Thanks for watching, and please be well.
The amazingly prolific HIV advocate and criminalization expert Edwin Bernard has announced the launch of the new web site for the HIV Justice Network, and it is the most comprehensive internet site devoted to the global issue of criminalization. Please join their site for updates or “like” their Facebook page. If you have any doubt that criminalization is the defining HIV issue of our time, then please read (and share!) the recent Huffington Post article by Sean Strub (founder of The SERO Project, which also has a Facebook page). Sean succinctly lays out the insanity of non-disclosure laws and why they should make us all nervous (and how we can participate in advocacy efforts).
Monday, October 22nd, 2012
The story behind the title of Michael Kearns’ memoir The Truth is Bad Enough is as delicious as the title itself. As Kearns’ parents – themselves worthy of a Tennessee Williams subplot — battled each other at their divorce proceeding when Michael was a child, his father presented damning surveillance of his mother’s many infidelities. The evidence was unimpeachable, but then the father tried raising the stakes by charging that the woman also physically abused him.
Kearns’ mother couldn’t be contained and interrupted the proceedings. “Your honor,” she said. “Why is this man lying? The truth is bad enough!”
The truth is sometimes difficult, to be sure, but in the case of this engaging and fast moving autobiography, it’s also hilarious. There’s nothing more formidable than a drama queen with legitimate drama on their hands, and the life of talented, alcoholic, HIV infected, highly theatrical and perpetually horny Michael Kearns has had more peril than an Aaron Spelling series.
Kearns began his career in the midst of the “gay lib” of the 1970’s even if Hollywood was tight lipped on the topic, and it is that disconnect that pushes the openly gay Kearns into an unintended activist role and confounds his career aspirations.
After a featured role playing the older brother of John-Boy on The Waltons, Kearns’ future seemed secure. But test audiences reacted poorly to their scenes together because they showed the characters away at college. Kearns’ character never appeared again. Rumors that he was fired because he was openly gay were untrue but persisted for years.
Meanwhile, Kearns had a boyfriend who had written a fictional book called The Happy Hustler, and for which Kearns had modeled for the cover image. In order to generate book sales, a plan was hatched to present Kearns as the actual Happy Hustler – the book’s author – and send him on a press tour. Having been banished from Walton Mountain and still hungry for stardom of some kind, any kind, Kearns agreed to take on the counterfeit persona as a sort of exercise in ongoing performance art.
Keans’ drunken appearance as The Happy Hustler (a role he began taking far too literally in his private life) during a 1976 Tom Snyder interview sets the stage for both career success and life on a runaway crazy train. Kearns revels in drug and alcohol abuse as tricks and acting jobs come and go. He sleeps with celebrities and strangers with equal apathy. His status as the first openly gay actor of note invites curiosity and derision. He agrees to reveal his HIV positive status for an NBC interview almost as a lark, leading to a period of portraying “the gay guy with AIDS” in a collection of acting gigs.
I was drawn to Kearns’ story for the Hollywood gossip –– but I kept reading because of something deeper and far more riveting. And it had everything to do with how our lives were fated to overlap.
My own memoir A Place Like This travels some of the same West Hollywood streets. I was a bottom-feeder on the Hollywood scene (an expression I should probably withdraw now for its literal inaccuracy) and I never knew Kearns, but we did have a liaison in common: our bedding of the detached and unhappy Rock Hudson. However, let the record show that while Kearns’ dalliance was what gay men refer to as “standup sex,” mine was brief but at least horizontal. So, um, I win.
Many other famous faces populate the book – gay, straight, porn stars of various stripes, and the hypocritically closeted that Kearns, God bless him, outs on his pages with regularity. His characterizations of personalities we thought we knew are enlightening, gentle when need be, and sometimes quite sad.
The funny but famously acerbic Paul Lynde was kind and helpful to Kearns. Stage legend Leonard Frey (birthday boy Harold from Boys in the Band) sat despondently during a sexy gay house party, where looks trumped celebrity. The “monstrous” Charles Nelson Reilly was so threatened by Kearns’ sexual identity that he cut short their visit in Florida to work on a project, throwing Kearns out of the guest house and squawking insults from the porch in his orange caftan as Kearns was driven away.
And then, Kearns’ story includes a bizarre intersection between us that I found so revelatory and disturbing that I had to actually put the book down for several days while I reexamined an entire section of my life.
During the 1980’s I owned a gay phone sex company, Telerotic. It predated party lines and the internet; customers called our office and “ordered” the type man they wished to speak with, and one of my employees (struggling actors, every one) would call back the customer and take on the persona of whatever the client had ordered. I had opened the company after working for a competitor and discovering I was a very popular choice among the clients and had, well, a way with words.
One day, playwright James Carroll Pickett contacted me. He wanted to interview me, observe me doing calls with clients, and get a feel for the business as research for a play he was writing. We spent a few evenings together, as I answered questions, smoked cigarettes, made funny faces while talking to clients, and snorted copious amounts of cocaine in my bathroom.
Months later I attended a performance of Dream Man, which would become the most heralded collaboration between the playwright and his theatrical partner, who performed the role of the phone sex caller in the searing one-man show.
The actor was Michael Kearns.
Watching the performance nearly thirty years ago was a surreal experience, but it was the playwrights inclusion of the mechanics of my nightly calls that were so striking to me: the rolodex box filled with client notes, the gimmicks I used to appear more engaged than I actually was, my tricks to get the client to call again by teasing him with an upcoming sexual adventure I wanted to be sure to share with him.
And I missed the point entirely. It wasn’t until I read Kearns’ book that the facts of the character he portrayed came into view: an isolated, frenzied and increasingly unhinged gay man with no prospects or esteem, playing to an audience of one – whatever desolate client he could hold hostage during their phone call.
The play was an aria of anguish, but all I could focus on during that performance so many years ago was the damn rolodex cards. I was incapable of facing the “dark density” of the character, because if I scratched its surface I would have clearly identified the drug addicted, desperate young man that the playwright had come to interview. And I may have revealed far more to him than I ever imagined.
Dream Man would be performed across the country, in Spain, Ireland, Germany. And through those years I continued my destructive path, having lost an opportunity for my own moment of clarity in the dim light of that West Hollywood playhouse. Reading about it now, in this book, rattled me to the core, and the book sat untouched on my nightstand for several days.
The last third of the book focuses on Kearns’ adoption of a baby girl born to a crack addicted mother, his selfless love for her, and how their bond throughout her upbringing conjures everything from his fears of AIDS mortality to his unresolved issues with his own troubled parents. These pages are filled with a grace and maturity that are miles away from the drug- and celebrity-induced selfishness of his life thus far, as Kearns gently guides the reader down to earth, into the bosom of family, after pages and years of breathless shenanigans.
“Acceptance is the answer to all my problems today” is a common refrain among those, like Kearns, dealing with recovery from drug and alcohol addiction. His book is imbued with that acceptance, just as reading it allowed me to accept whatever part of me was on display in the lonely, reckless stage creation Kearns most famously brought to shattering existence.
Tuesday, July 31st, 2012
AIDS2012 was exactly as I had hoped: an enormous “summer camp” for advocates from around the globe, and I had a blast bringing their stories to you. Let others cover the medical updates and the big name speakers. I wanted to give you a sense of the people who are doing the work on the front lines – with a few bigwig interviews along the way.
Every day I sought out stories I thought would interest you and took a ton of footage (with the help of my talented camera person and schlepper Tina Robles). After a bite of free food from whatever reception was happening, I tried to make it to at least one evening event. And then back to my hotel, where I reviewed the footage, did my best to conceive a theme for the day, and then started editing. I’m quick at the editing part, but it still took 4-5 hours, into the wee hours of the morning. Then I’d sleep for a couple hours and start again. I’ll need the two years between now and AIDS2014 just to catch up!
Here are links and a review of each of the six video blogs I produced during the week. Simply click the title to see the posting and watch the video.
Since less than 5% of the programming for AIDS 2012 is targeting to MSMs (Men who have Sex with Men), a special one-day pre-conference is held the day AIDS 2012 convenes to address the needs and issues of this population.
My report includes a chat with United States Rep. Barbara Lee (right), who has just introduced comprehensive HIV prevention and anti-stigma legislation; the advocates fighting laws that criminalize people with HIV (like Sean Strub and Edwin Bernard), a little social research on Grindr (the gay man’s cruise phone app), a chat with Positive Frontiers editor Alex Garner about getting rejected (and rejected others) during the dating process, and a visit to an AIDS2012 Reunion poz social event.
In this brief video episode from the first official day of AIDS2012 the party is rolling, with an outdoor concert (steps away from the AIDS quilt) featuring Weyclef Sean and Cornel West (!), dancing dignitaries, and a somewhat surprise ending!
The fact is, Day One was a light day, the calm before the storm, as people poured into DC and braced themselves for the busy week ahead. And it was my last chance to get a decent night’s sleep.
I spent some time in the exhibit hall critiquing the fashions (and the issues) of various attendees with fashion maven Jack Mackenroth (poz and proud veteran of “Project Runway”), started a YouTube rivalry with inspirational singer Jamar Rogers (“The Voice,” right), and learned about HIV and aging from an expert with the Terrence Higgins Trust. I also had the chance to speak with the head of the CDC’s HIV/AIDS Division about their new “Let’s Stop HIV Together” campaign, in which Jamar and myself both participate.
And, with all the talk at the conference about the devastating effects of HIV stigma, I found validation of my own HIV status in the unlikeliest of places: the Gallery Place subway station.
Several contingents marched and protested separately throughout the city – marching for housing, and civil rights, and in protest of the pharmaceutical industry’s “intellectual property” policies – and then convened in front of the White House. Whereas the march and rally at AIDS2010 in Vienna was a peaceful affair, our proximity to the White House, the aggressive crowd and the police on horseback all lent an air of old time activism circa 1987.
The people included in the video can speak for themselves, and quite eloquently. Maybe it was the emotions of the event — anger, nervousness, pride — but it was an exhausting day. I felt the residue of grief for lost friends in a way I haven’t experienced in years.
This is my favorite, no doubt, and I’m proud of the visual and audio techniques I employed to give some historical context to the event.
It was time for a tour of the heart and soul of AIDS2012: The Global Village. This massive hall is the only part of the conference open to the public, and it has a grass-roots feel, crafted from the love and devotion of hundreds of community groups who are doing “the work on the ground” in cities and small towns throughout the world.
Thank God I’m a video blogger, because words escape me when trying to describe the colors and displays and most importantly, the committed people behind it all. You’re about to meet drag queens who make their living handing out condoms, sex workers demanding an end to criminalization, young prevention workers from far-flung corners of the planet, a stunning photo exhibit from the Ukraine… the list goes on.
Our little summer camp for global AIDS advocates (and physicians, and commercial interests) had come to a close, and there are images that will be knocking around in my head for weeks to come (and some, forever).
I begin this video with the astonishingly talented performance poet Mary Bowman, a young woman with HIV showing us her heart and soul on stage. It’s a jumping off point for this final, brief video, in which I pay tribute to the people on the front lines who are the very essence of this conference. They are the ones with the “star power.”
This opportunity to share my experiences at AIDS2012 was a distinct honor and privilege, my friends. My deepest thanks to you all for the many cross-postings and shares and tweets. This was a week I will never forget.
Enjoy the videos, and please be well.
Tags: Aging, aids, barebacking, criminalization, culture, drag, gay, gratitude, help others, hiv, physician, politics, recovery, Recreation, research, Sexuality, testing
Posted in All Other Video Postings, Books and Writings, Family and Friends, Gay Life, Living with HIV/AIDS, Meth and Recovery, My Fabulous Disease, News, Prevention and Policy | 5 Comments »
Thursday, March 15th, 2012
When I was nine years old, I took my parents’ album of the Broadway musical “Damn Yankees” and memorized every syllable of Gwen Verdon’s show stopper, “Who’s Got the Pain When They Do the Mambo?” Once I was satisfied with my lip-synching and choreography (I decided that a mambo was a dance in which young boys gyrated and flung themselves on and off the living room sofa), the number was ready for public display.
The premiere was a simple affair, exclusive and unannounced. Mrs. May from across the street had stopped in for afternoon coffee, and opportunity knocked when Mother busied herself in the kitchen for a few minutes.
Not a smart move, Mother, leaving Mark alone with the company.
“Mrs. May, would you like to see me do a song?” The unsuspecting woman gave a polite “yes, that sounds nice” and before Mother could run interference I had turned on the stereo and dropped the needle at the precise moment where Gwen breaks into song.
Mrs. May stared and stared, her hands folded neatly in her lap, as I brought out every sashay, twist and thrust in my dancing arsenal. My moves may have been imperfect but I vocalized brilliantly, thanks to Gwen. As I struck my final pose, arms reaching for the heavens, frozen and triumphant, I saw mother standing in the doorway, holding a plate of cookies and breathing heavily through her nostrils.
Future performances would be limited to my bedroom, where I could conjure an audience cheering with acclamation and mothers wouldn’t put you on restriction.
It is that boy, the cheerful but feminine performer, that I always feared would creep out of me as I navigated young adulthood as a gay man. I worked to shed his characteristics, to replace every soft gesture with a wooden one, to embrace the gym and tank tops and Levi jeans with the same fervor I once had for my beloved Broadway musicals, with mixed success.
And then, a lifetime later, as I worked for an AIDS agency in Atlanta in the 90’s, destiny called. An upcoming drag contest to benefit our agency was suffering from poor participation, and my boss asked if I would consider entering.
Being a drag queen, even for a night, terrified and delighted me. But the performer in me won out, wouldn’t you know, and Anita Mann was born. I created an interactive video rendition of Donna Summer’s “This Time I Know It’s for Real,” (even then, long before this blog, I was toying with the possibilities of video) and won the contest.
Soon I was performing with “the camp drag queens of the south,” The Armorettes, who hosted a Sunday night show to raise funds for AIDS organizations. Over the years they have raised over $1 million dollars, and their show was a sellout every week. But my own phobic notions lingered.
I didn’t want to be known as a drag queen (“It’s comedy! I’m a performer!” I would insist). I never appeared anywhere in drag but on that stage – I would always get dressed at the show, and was often out of drag for the final curtain call, in a bid to display whatever masculine credentials I had to offer.
I would hear other gay men make disparaging remarks about drag and I withered, unable to admit I was playing to a packed room every Sunday.
The nexus of shame and shamelessness is a complicated one. Each week I put on full display the very things about myself that I had worked so hard to reject – my femininity, my silly pursuit of acceptance through laughter and applause. And just as I gained confidence in what I was doing and why, I would lose a potential boyfriend when he learned of my weekend talents.
As a growing drug addiction encroached on my free time, I abandoned Anita Mann to its demands. For many years thereafter, Anita’s dress and wig would be relegated to a duffel bag hidden in the back of the hallway closet. I had found a vocation in drugs that offered twice the shame and every bit of the need to keep quiet about it.
It took a few years in recovery from my addiction before Anita would make her comeback. Armed with a TV set and a sense of the absurd, Anita performed at a benefit for those of us in recovery, in what may have been her finest hour. Her rendition of “Don’t Get Around Much Anymore” grows more insane by the moment, and perfectly embodied my interest in multi-media performance.
And yes, I am aware that I speak of her in the third person. Maybe it is because I view her as a character I have created, and perhaps it is the remnants of shame, and of my need to keep her at a distance.
It’s strange, how those things about which we have drawn the most shame are also able to liberate us, not to mention help others. My HIV status. My drug addiction. My drag personality. As I have embraced each of these, I’ve found self-acceptance and a way to carry a message of hope, and even joy, to others.
Anita Mann limits her performances these days to recovery related engagements. It seems fitting that these two aspects of my life, both once secretive, have found their place together. Anita has a voice now as well, doing a sort of recovery stand-up and even singing live when the occasion permits. Anyone in recovery might enjoy watching the highlights of her recent stint at the Crystal Meth Anonymous conference in Atlanta, which includes her bittersweet rendition of “Happiness is…”
Meanwhile, I still struggle with the need to project as much masculinity as I can muster. I swagger more than I sashay. I sport a beard when possible. And I work to maintain a strict gym regimen.
It’s important for me to stay in shape if I expect to fit in that dress.
The HIV Cruise Retreat is going to be sold out early this year, because the cruise ship, unlike previous years, is taking back unsold cabins from the cruise organizer that are not sold within the next week. In years past, cabins for our group could be sold much closer to departure. This is probably due to the popularity of the Halloween voyage, and it means you must act now to get a spot. I love this event. Contact Paul Stalbuam at 888-640-7447 or visit www.HIVCruise.com.
Tags: acting, culture, drag, gay, help others, hiv, meth, recovery, Recreation
Posted in Anita Mann and Acting Gigs, Family and Friends, Gay Life, Meth and Recovery, My Fabulous Disease | 9 Comments »
Tuesday, December 13th, 2011
My mother’s home here in Shreveport, Louisiana, was fraught with excitement last week. Christmas decorations littered the living room, the almond scent of cookies filled the air, and last minute phone calls and arrangements made it all feel like a major production was underway.
And there was. The event that had everyone scrambling was held on a Sunday afternoon, when siblings and extended family arrived for the taping of The ‘My Fabulous Disease’ Holiday Spectacular.
Now just take that in for a moment. My family was enthusiastically participating in a video about my life with HIV. And they were much more concerned with choosing a fun holiday outfit than being publicly associated with their HIV positive relative. For them, sitting down for an interview about my HIV status, well, that was the easy part. They had no problem being candid about my HIV, as you will see.
I am an extremely blessed and fortunate man.
When I was young, I remember watching “The King Family” on television (right), a big happy bunch that sang really well and wore lots of matching outfits. I was starstruck, and always wondered if that King family might bear some relation to mine. And if they didn’t, would they let me come be on their show anyway?
Well, today, I’m proud of my own family for displaying our dubious talents, and by going a big step further by discussing the importance of supporting those of us living with HIV/AIDS. For far too many, the difficulty in disclosing our status — or the result of doing so — has distanced them from the people they need most during times of challenge.
The Holiday Spectacular includes some family greetings, a cooking segment with Mom (you’ll want that divine almond scent wafting through your home, too), some holiday drag, a surprise here and there, and even an appearance by the big man himself, Santa Claus.
You may remember my mother from “What it Feels Like for a Mom,” a bracingly honest video created for Mother’s Day. You might also remember my gay brother Dick, who made an It Gets Better video with me. He was also one of the main subjects of the award winning “Once, When We Were Heroes” posting I made for World AIDS Day several years ago. But today, you’re also going to meet sisters, nieces and in-laws who have special holiday greetings just for you.
Enjoy the holiday special, my friends. I hope you’ll share it with anyone that could use some holiday cheer, or needs a reminder that they are loved. And as always, please be well.
p.s. As promised in the video, here is the recipe for Mom’s Christmas Cookies. I’m certain they’re fantastic for your t-cells.
(Note: Mother uses a MIRRO Food Press, a device that must have been manufactured during the Eisenhower era, judging from the faded instruction manual she still keeps handy. I found one on E-Bay for you for less than four bucks, or you can use a more modern appliance, if you must. I don’t guarantee the cookies will taste the same!)
Time: 10-12 minutes… Temp: 375F… Yield: 7 dozen
1 cup shortening
3/4 cup sugar
1/8 tspn salt
1/4 tspn baking soda
1 tspn almond extract
2 1/4 cups sifted flour
Green food coloring
1. Cream shortening, adding sugar gradually
2. Add unbeaten egg, dry ingredients, flavoring, and a few drops of food coloring. Mix well.
3. Fill the cookie press and form cookies on ungreased sheet. Sprinkle with sugar and bake.
4. Frost and sprinkle something fabulous on top of them (this is Mom’s provocative departure from the original recipe. That’s just how she rolls.).
Tags: aids, culture, drag, family, gay, gratitude, help others, hiv, recovery, Recreation
Posted in Anita Mann and Acting Gigs, Family and Friends, Gay Life, Living with HIV/AIDS, My Fabulous Disease | 21 Comments »
Tuesday, December 6th, 2011
Remember when we were little, and if we wanted something we simply asked for it? It felt easy. It seemed natural. And if there was really something special we had to have, there was a golden opportunity every year to ask the person who made all things possible. Santa Claus.
But then we got older, and life became more complex, and we were told it was better to give than to receive. Asking for what we wanted felt selfish, and many even a sign of weakness.
I wish we could look at this differently. Admitting we want something can be liberating. It acknowledges we are human, and there is grace, beauty even, in revealing our need and being vulnerable and allowing someone to help us.
Just because we don’t ask for toys anymore doesn’t mean we don’t want anything. We want friendship. We want to be accepted. We want our health. Maybe it’s asking a friend to listen, or wanting a medication with fewer side effects.
Just saying, I need this. I want to feel better. Or, I need you.
Wanting is not limited to children, my friends. But we might take a lesson from their transparency. Sometimes the answer, the help we need, the gift waiting for us, will only appear when we take a chance, when we finally have the courage to ask for what we want.
Happy holidays, and please be well.
(I don’t think I’ve ever been more excited about a video blog than the one premiering here next week: The “My Fabulous Disease” Holiday Spectacular! A dozen of my relatives have come together to bring you comedy, Christmas cookies, a little drag, a visit from Santa — and some very candid feelings about loving a family member with HIV/AIDS. I hope you’ll come back next week and meet the family! — Mark)
A word, if I may, about my recent posting “The Long Road Home from Relapse,” which managed to break traffic records on my blog, generate amazingly supportive comments, and also became its own source of concern among some of my fellows in recovery. As a few of the comments suggested, my drug relapse was a serious event that even I may not fully appreciate just yet, much less be able to distill its lessons to my readers. Some felt that writing about it so soon after the fact seemed cavalier. I’d like to say that my actual recovery process — the work I do on a daily basis to rebuild and maintain a clean and sober life — involves many things that are completely unrelated to my writing. It is ongoing and intimate and I take it very seriously. I considered withholding the relapse from my blog, but it just felt dishonest not to talk about it. My point is, there is work ahead for me that I hold dear and will keep to myself, my sponsor and my God. As Tony Kushner writes in the last line of Angels in America, “the great work continues.”
The madness continues of criminalizing those with HIV who do not (allegedly) reveal their HIV status to their partners, and new cases are piling up around the country. These include many prosecutions in which protection was used and no transmission occurred. But only now have we been able to hear the voices of those who have experienced this Kafkaesque nightmare. In his upcoming documentary “HIV is Not a Crime,” AIDS activist and writer Sean Strub gives voice to the “criminals.” Their stories are riveting and heartbreaking, like that of Nick Rhoades, right. You can view a terrific trailer on YouTube, and I dare you not to let it make your blood boil, positive or not. I urge you to take a look and get educated on what is becoming a defining HIV issue for our time.
Did you catch all the media attention last week stating that people with HIV aren’t taking very good care of themselves? Oh yes indeedy, the news reports, with headlines like Few in US with HIV have virus under control, and HIV Out Of Control In US Patients, seemed to suggest that it was people living with HIV who somehow haven’t been doing the right thing to maintain their health. And that’s a load of hooey, as my dad used to say. It turns out that the reports were misrepresenting a new CDC study showing that less than half of HIV patients have access to proper treatment. As in, not their fault. This distinction was made in an eye-opening blog posting by Housing Works, in which the actual study vs. the media reporting is clearly explained. “We are facing major budget cuts in homeless services, housing, testing and prevention,” blogger Kenyon Farrow states. “These all prevent people with HIV from staying healthy and make many more people vulnerable to infection… By focusing media scrutiny on government officials, the public would be better informed about who’s really ‘out of control.’”
The Windy City Times continued a remarkable year-long commitment to covering AIDS this week, which is really a story in itself — a gay paper intent on maintaining visibility of the crisis in commemoration of the 30-year milestone. So I am especially excited that the paper chose to run a profile about My Fabulous Disease as part of their World AIDS Day coverage. Writer Joe Franco, intrepid journalist that he is, took the time to both interview me and actually watch most of my videos, if you can imagine. In his piece he manages to discuss AIDS, community, comedy, drug addiction and drag. In other words, it’s a fair representation of what you get around here on a regular basis. My mom loved it.
Tuesday, November 29th, 2011
Florida highways have lovely rest stops. You would expect that from the Turnpike, where toll booths charge a premium every so often, but the manicured picnic areas continue even as you drive further north and onto I-75.
I’m on a cement bench in a concession area, chomping down corn chips and a Mountain Dew, away from the dog walkers and the families gathered at picnic tables, when I notice that my jeans are gathered sloppily around my waistline, cinched so much tighter than before. How much smaller has my waist become in such short a time? I wonder. One inch? Two?
People sometimes stroll near me on their way to the restrooms, and I keep my eyes down, afraid I might look too disheveled for their comfort, or worse, that my shame might be clearly written across my face. That they might see what I’ve done, and return a glance of judgment or pull their children closer.
The self pitying tone of these words doesn’t suit me. Pity is such a useless emotion at a time like this. Let me start again.
The drug relapse came over me like a sickness, as if I was coming down with something, slowly, over weeks. The breakup with my former partner last month in Ft Lauderdale had been cordial, and he and I continued living together while I made plans to relocate back to Atlanta. First, though, Thanksgiving would be spent with his family, as a final goodbye and a chance to show our unity — and of what remained of our broken love — during this trying time.
But my disease of addiction had already begun rearranging my thoughts, shuffling my priorities in a bid for dominance over the vigilant recovery I had practiced, proudly and successfully, for nearly three years. Small changes crept into my behavior, not about drugs precisely, but other, vaguely related habits that had once accompanied my drug use.
A return to the gym and a shallow fixation on my body. Smoking, a habit broken for two years, returned in secretive fits and starts. A feeling of entitlement — to do as I pleased, to eat junk or get laid — swept over me like a declaration of freedom that hid its true intentions in the fine print.
And then the clarion call became more explicit, as involuntary images of using drugs bombarded me, plaguing my sleep and my daydreams. But while my memories of life as an active addict had previously been reduced, finally, to dark and sinister snapshots of a pitiful existence, these new images were more seductive, promising euphoria, fast sex and most of all, a lurid escape from my own feelings.
When my former partner left town on business the week before Thanksgiving, the drug addict inside me made a break for it.
It’s startling, really, the speed at which a recovered crystal meth addict, filled with a sense of purpose and a devotion to helping others dealing with this disease, can be transformed into a selfish liar. About as long as it takes the first, transformative rush of the drug to enter your body.
But the images that promised everything delivered nothing. Or that is, they delivered the usual package of misery that I should have expected, from my own past experiences and the many, many stories of woe I have heard from other addicts.
Those images — the real ones I witnessed during my relapse rather than the counterfeit promises with which my disease had baited me — haunt me now. I don’t want to conjure them, the lesson has been received, but they roll on. Images of desperation, of blood and jeopardy and strangers with my fate in their hands.
The street crack dealer, with whom I am pleading to please return the keys he has taken from my pocket, who tells me he is going to “rent” my car for errands, who threatens me through a manic grin and all the while I am trying to convince him to please, please just give back the
You don’t need to hear this. This is mine to endure and overcome. Let me start again.
There are many motels sprinkled along the exits in Orlando, and I scouted out several before choosing one that allowed me to park directly in front of my room. With the car piled high with my belongings, I had to be sure no one would steal it. Despite the exhaustion of the previous week I slept fitfully, waking to peer out the window and survey any disturbance, fearful that my despair could multiply. The rolling stone of misfortune can gather plenty.
This long drive was unplanned, of course, the consequence of my relapse, when after days of not being where I was supposed to be and phone calls piled high with deceit, my former partner pegged my insanity and sent me a text from his business trip, asking me to leave before he returned. My disregard for our home, the dogs, and my personal safety was simply too much. A mutual friend arrived to care for the house. I would pack and leave within a day, to sit out the holidays with family in Shreveport, Louisiana, a thousand miles from Ft Lauderdale.
Even before his discovery, the awful realization of what I had done, how I had taken our gracious final days together and twisted them into something horrific, had actually spurred my relapse further, as I sought escape from my own wreckage. By the time his text appeared on my phone, the smoke was clearing, the fever had broken, but it was far too late.
The comfortable highways of Florida eventually gave way to the ruined roads of Alabama and Mississippi, badly spackled with tar, and my car rumbled with the thumpa-THUMPA-thumpa of their scarred surfaces. I wondered if the framed pictures in the trunk might break, if the towels I had wrapped them in might not be enough to
The towels. The guest room towels. They didn’t really belong to me. It set off another round of worry, and I wondered if a new label might be added to my sadly recycled identity.
Drug addict. Liar. Thief.
I had turned back once already, when I had first driven onto the freeway before realizing I had his watch on my wrist, a watch I had always worn but wasn’t mine. I drove back to return it, and in the hour or so I had been gone, the quiet house had abandoned any welcome for me. I placed the watch on a table and locked up again. It felt like trespassing.
In Mobile, Alabama, I stopped again for the night and this time managed a full twelve hours of dreamless sleep. In the morning at the Waffle House, I ordered steak, eggs and hash browns, smothered and covered, and dismissed thoughts of what my trainer might think about my diet on the road.
Explaining my relapse is beyond me, beyond logic, and yet here I sit, trying to understand and explain. It maddens me, the choices I have made, and reminds me that the disease most capable of killing me isn’t HIV, it is drug addiction.
But this chronicle reeks of defeat, and I am not feeling defeated today. Let me start again.
The miles upon miles of endless highway give way to Louisiana, and Shreveport finally appears on a freeway sign. I relax into the anticipated embrace of family.
My tired car pulls into Mom’s driveway, and my brother — also gay and also an addict in recovery for more than a decade — greets me with an extended hug, and we begin the business of unloading the car immediately, as if to shoo away the evidence of my drive and the depressing reason for it. A guest room has been prepared, a closet cleared. For the next month, as I deal honestly with my tender wounds, this will be home.
Mother arrives from the hair salon, and her cheerful And how is my favorite redhead doing..? tells me that everything is going to be fine. She knows why I’ve come home, and she doesn’t require a single detail.
I’ve already begun the business of rededicating myself to my program of recovery, and there is pride in that. There is joy, in fact, once the truth has been told and the work to rebuild can begin. Not regretting the past, even the recent past, is a difficult job, but too much time spent looking in the rear view mirror hardly bolsters me for the road ahead.
I am grateful, to have regained my footing after a few terrible days, to have survived it, to have my freedom to make better choices. And I am filled with gratitude for the friends and family who have given me a precious gift.
They let me start again.
(My best wishes and deepest gratitude go out to you, my friends. Thank you for your encouragement and your many kind comments. If you know someone who might benefit from this posting, who might think there isn’t a solution, then please share it. Love, Mark)
I always have strange emotions about World AIDS Day, the annual commemoration on December 1st. It makes me feel a little like a professional drag queen having to contend with Halloween. Such a torrent of voices and contributors on “my” turf! But of course, that may be the point: to be re-energized and inspired by the many voices and news stories of others who might not be speaking up otherwise, and for me to realize that HIV isn’t mine alone, not by a long shot. The challenges it presents affects all of us, and calls out for the best in science, the best in our sense of community, the best of humanity itself. You’ll surely find many things online that resonate with you this World AIDS Day, so let me show you something you might miss. Love Light Romania provides support to people with HIV/AIDS in one of the toughest places on earth, but they have somehow found something beautiful in the tragic story of Alex, one of their clients who shares his life in a four minutes video filled with gorgeous photography of his journey. The simplicity of this video and his matter-of-fact telling of his story captures a beautiful sadness, and I hope you’ll take a look.
Tuesday, October 4th, 2011
During the first year of producing my blog videos back in early 2009, it occurred to me how much of my health and happiness was the result of having a solid support network. I wanted to find a way of showing this through my blog, and the result would be two video episodes that remain a true highlight of My Fabulous Disease.
What might it be like, I wondered, if I invited some friends living with HIV over to my place and the video chronicled our evening together? Was there value in showing our support and friendship? My cinema verite experiment could be inspiringâ€¦ or a complete bore.
I needn’t have worried. When Craig, Eric, James and Antron arrived for dinner, they plunged into the evening with startling honesty and affection for one another. While my BFF Charles worked the camera (the man is a saint; he didn’t eat at the table with us so it wouldn’t intrude on the filming), the five of us let down our guards and shared on a variety of topics.
We talked about our mothers, and how and when we disclosed to family and friends. We talked about dating, and loneliness, and what we tell people who have just tested positive.
When “You Gotta Have Friends” was posted on TheBody.com on April 22, 2009, it became my most popular episode to date and received a flurry of comments from across the globe. So many people loved seeing a group of men with HIV supporting one another and having that level of honesty. For many viewers, simply seeing friends with HIV living happily was an inspiration.
They loved doe-eyed Antron, the 23 year old with the heartbreaking story of his mother’s reaction to learning his status. They left comments about the tattooed, sexy James, and his candid stories of sex and disclosure. Viewers loved the philosophical Craig, and his moving description of his mother’s face the moment he revealed his status, and equally, how Eric created his “HIV Team” of physicians and family to combat his disease.
As for me, I look back at this episode and wish my video editing skills were as honed as they are now, and I regret filming when my face was swollen from my initial facial filler treatment (I look like I’m welcoming you to Munchkin land). But I couldn’t have been more thrilled with the response to the video and knew that I would have to produce another episode with this amazing group.
That would happen a year later, when “The Real Poz Guys of Atlanta” was posted on TheBody.com on February 23, 2010. This time we skipped dinner and went directly to dessert, as I taught my friends how to bake my legendary brownies. Then we sat by the fire for a conversation even more intense than our last, sharing about partners lost to AIDS, our sex lives and what constituted “acting out,” and even a round of show and tell, as each of us brought something of meaning to our lives with HIV.
There’s no doubt that I will do another episode with my friends again sometime, but I wanted to update you on their lives as they are today.
Eric, who famously declined to discuss his status with most people because “I’m Southern. We don’t talk about such things,” reports that his life is getting even healthier. “I quit smoking after 32 years on tobacco, I joined a gym, I got a trainer, and I have a new consciousness on eating,” he says. “At this rate, I’m going to live forever.”
Eric is also glad that his Mom remains one of his biggest supporters. But that wasn’t meant to be for Craig, who has lost the mother he so lovingly described in our first episode. “I am still recovering from that ongoing blow and the indescribable loss” Craig told me. “She was one of my best friends and it is still hard to really accept life without her in it.” Craig continues his work as a leading voice for gay men of color and HIV prevention.
The grief is something Eric can relate to, considering the loss of his partner Maxwell, about whom he shared in the second episode. “I don’t want to forget him,” Eric says now. “It’s not really sadness, but more a sense of him that stays with me.”
Antron has stopped writing in the black journals he brought to show and tell, and uses his laptop these days. That will come in handy for the young writer, who has a new project consisting of poems, short stories and rumination entitled Ayo: Lost and Found.
The advice that Craig had for Antron to carefully consider “who he lets into his life, and into his bedroom” hasn’t been lost on Antron, who tells me, “I have a deeper responsibility to value myself more and form a beautiful relationship with me first before pursuing any one.” He is planning to move to New York in January, and maintains a blog for his writing.
The dating life that James was negotiating in both video episodes has slowed, and for some challenging reasons. “I seem to have developed a fear of discussing my HIV and HepB status with potential dates,” he says. “I’m back on interferon for another 48 week treatment.”
The grueling treatment hasn’t affected his work as a massage therapist so far, but James is vigilant about the potential effect on his recovery from drug addiction. “Friends are so important right now, making sure I don’t isolate and relapse like I did during the last interferon treatment. I am blessed to have some really great friends.”
And that sentiment is really what this project was about for me. The healing grace of our friends, and how that support comes in handy during trying times.
Do you have a strong circle of friends who know your status or otherwise have your back? I’d love to hear some of your experiences and what you might advise someone who is considering whether or not to disclose their status to their social circle.
In the meantime, my dear friends, please be well.
Tags: culture, family, gay, help others, hiv, physician, recovery, Recreation, Sexuality
Posted in Family and Friends, Gay Life, Living with HIV/AIDS, Meth and Recovery, My Fabulous Disease | 4 Comments »