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Posts Tagged ‘Sexuality’

The Day Larry Kramer Dissed Me

Tuesday, January 31st, 2012

The mall was abuzz, with people darting in and out of stores, wrangling their kids and chatting on cell phones. I preferred it that way, because it kept Larry in a fairly calm state of quiet attention, ever vigilant as to where and when his next mortal enemy might appear.

“Hold the railing, Larry,” I instructed as we stepped onto the escalator. He was still wobbly from the blood rush of spotting a confederate sticker in the parking garage and I felt protective when strolling with such a national treasure.

“How about I just lick the ass of a green monkey?” Larry replied. “If you knew the germs on these rubber banisters you’d slit your fucking wrists…” He trailed off.

Larry Kramer2“Then hold my hand, Larry,” I countered. He complied, if only so he could launch our clenched hands above our heads, as if we’d just been pronounced married or one of us had won a title match. He kept our hands there the whole flight up the escalator. When I glanced at him his eyes were years away and his lips moved quietly. A White House protest, I figured. Or perhaps a pharma demonstration.

Well, he likes this and he’s calm, I thought. Maybe we can do this on the way back down.

It was hard enough getting him to the mall at all. I had arrived at his place just in time to break up an altercation between Larry and the mother of the Girl Scout from whom he had ordered eighty boxes of Thin Mints, which were presently scattered across his front porch and had suffered the wrath of Larry’s ACT UP boots.

Larry had no intention of paying for the cookies, as it turns out. He was ferociously screaming that his non-payment was to help bankrupt the corporate pimps RAPING THAT LITTLE GIRL! Both the mother and the girl in question had taken refuge in their car, the girl crying hysterically about not wanting to be raped, while I managed to hold Larry back from beating their Honda with a lawn sprinkler until they made their eventual escape.

But that was, after all, fully two hours ago, and multiple indignations could befall Larry Kramer in the course of an afternoon. All things considered, we were having a lovely day.

There were minor snafus, of course. Already, a Sprint salesperson had paid dearly for his unfamiliarity with rollover minutes or the level of employee giving to needle exchange. As we passed Abercrombie & Fitch, Larry stopped in their doorway and bellowed “FAGGOTS!” again and again, for two full minutes. It might have gone on were it not for an astute customer in the Barnes & Noble, who brought over a copy of “The Normal Heart” for his signature. The gesture appeased him, then produced weeping and finally Larry’s agreement to relax on a bench while I stroked his back.

“You could do with a little less drama, you know,” I offered.

“Fucking murderers,” he replied, but his fatigue was setting in. “Drug companies. Politicians.”

“Let’s not forget organ donors, sweetie. And surgeons who install livers into the bodies of old, wrung out former drug users.” Larry made a dismissive, huffing sound.

“You’re an apologist, Mark. You forget too much.”

“You remember too much, pumpkin. Now let’s check out Macy’s. I need socks.”

The Macy’s perfume spritzer girl couldn’t list the chemical compounds in “Citrus Spring,” so of course Larry brought her to tears by saying it was she, and not the perfume, that smelled like a dead lab rat. He upped the ante by grabbing bottles of nail polish from the counter and splashing her in Jungle Red while screaming “the WHOLE WORLD is WATCHING!

Then all hell broke loose.

Security arrived and found a crying, seemingly blood-soaked spritzer girl and Larry, elated at the appearance of men in uniform, dropping to his knees, continuing his chants, and then collapsing onto the floor in his best dead body position. A twittering crowd quickly formed, some of whom had followed incredulously since the scene at Abercrombie.

I considered making a chalk outline of Larry — I kept a piece in my jacket for occasions like this and it gave him such joy — but something in me snapped.

“Get up this instant, Larry,” I ordered, and he opened a dead eye. The security gentlemen seemed relieved someone was taking charge of the deranged elderly man lying prone before them. “I’ve had enough for one day. Save it for the National Mall. World AIDS Day is coming!”

He cocked his head towards me. “What would you know about AIDS, Mark? You’ve never had infections! Where are your lesion scars? You still have your first fucking liver, you pretender! You lightweight!

A woman in a nursing uniform broke through the crowd and looked back and forth between the spritzer and Larry, trying to determine who needed help most urgently. Everyone, including the sales girl, nodded in Larry’s direction.

“Sir, have you fallen? Do you understand me?” she asked him.

“Fuck yes. Shame on your profession and your paralyzed inaction in the face of… of…” Larry contemplated what the woman’s worst offense might be while surveying the floor around him in hopes of locating more red polish to splatter. He found none.

“Sir,” she went one, not yet convinced of his stability, “who is president of the United States?”

God I wish you hadn’t asked that, I thought.

“Shall we catalog them?” Larry bellowed. His second wind was now in full gale force. “First, Ronald Reagan has the blood of our brothers and sisters, too many of them, on his hands. He murdered them as sure as I’m standing here,” a posture which was technically inaccurate, although Larry did allow his oratory to raise him to a kneeling position.

“I can take him from here,” I interjected, and pulled Larry up and beside me. “If you’ll just allow me to get him home…”

“And then Bush continued the slaughter! He treated us like shit!” came the next outcry.

The security men agreed without hesitation. “If you can take responsibility for your father and agree to exit immediately…” one of them said. I actually half laughed at their mistake, and at the irony.

“No problem,” I promised, and we said our goodbyes as Larry’s outbursts trailed again and we walked back to the escalators.

He took the railing without protest or remark, and that disappointed me. I kind of missed riding down with our clasped hands thrust defiantly in the air.

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This is a work of fiction. I have never had the honor of meeting Mr. Kramer. Originally posted in May of 2010, I couldn’t resist sharing it again. And yes, I have it on good authority that Mr. Kramer enjoyed it.

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Posted in Books and Writings, Gay Life, Living with HIV/AIDS, My Fabulous Disease | 2 Comments »

HIV Positive Criminals: Have Sex, Go to Jail

Thursday, December 29th, 2011

This may be the defining HIV issue of our time, and it is a true test of our compassion and understanding of both HIV stigma and the law. Please read this closely.

JailHandsAround the country, and without leadership or guidelines from the Federal government, individual states have taken it upon themselves to draft laws that “protect” people from those of us with HIV. Whether using bio-terrorism statutes (!) or simple “assault with a deadly weapon,” people with HIV who do not disclose their status to their sexual partners are risking arrest and prosecution.

You’re already having a visceral response to this scenario, aren’t you? You may have the vague feeling that anyone who doesn’t disclose their HIV+ status to a partner probably deserves to be punished. Don’t worry, you’re not alone. Not only do most people support laws forbidding sex without disclosing an HIV+ status, but even a majority of gay men support such laws, and it is understandable, albeit a misinformed view, as to why.

Many of us know someone who was infected by a partner who didn’t disclose their status, or even lied about it. I have friends who dated someone claiming to be negative, until they found a telltale prescription drug bottle and then discovered they had been infected. Worse yet are the news reports showing some big, scary black man who has been raping white women and infecting them with HIV. How could anyone argue against bringing these liars and malicious infectors to justice?

But the sad fact is, most prosecutions under these laws are not being imposed against those who are deliberately malicious or even criminally negligent. They are being imposed using not science, but the same ignorance, stigma, homophobia and racism that has plagued HIV/AIDS throughout the years. And well intentioned people like you and me are buying into it.

In Texas, a man is serving more than twenty years for spitting on a cop, despite the impossibility of transmitting HIV. And in the vast majority of cases against people having sex without disclosing, no transmission even occurred. In fact, whether or not there was any real risk of transmission is of little concern to prosecutors. People on medication with no viral load, for whom transmission is a remote possibility if at all, are being sentenced to jail time for not disclosing — even if they used a condom and did not transmit a thing. And the sentences are outrageous: decades of jail time in many cases.

Consider the black woman for whom disclosing her HIV status is more than a mere embarrassment; it could mean the collapse of her support network, the loss of a job or even physical danger. She is a compliant patient with no viral load, and insists her sex partner uses a condom. He somehow learns of her HIV status, calls the cops, and she is prosecuted and imprisoned. These are not fantasy scenarios, they are happening with increasing speed around the country.

The effect of these laws on public health is sobering. If those who know their status risk prosecution for not disclosing, and those who don’t get tested at all can have sex without legal consequences, how does that draw people into HIV testing? As activist Sean Strub says, “Take the test and risk arrest.”

The laws in some states are written so strictly that it is a legal risk for any HIV positive person to have sex at all. All the prosecutors need is to know you are HIV positive and you had sex with your accuser. If the accuser claims you didn’t disclose, you’re in for an uphill battle convincing a judge otherwise. You’re saddled with the distasteful nature of any positive person actually having sex, and if it was gay sex, well, God help you.

Activist Sean Strub has taken this issue up as a personal crusade. I first met Sean two years ago when I produced a video blog with him discussing the issue of HIV criminalization. He took it to the United Nations AIDS Committee last month, and brought along two heartbreaking stories in the testimony of Robert Suttle and Nick Rhoades.

Please take three minutes to watch the testimony of Robert, who was jailed for six months and will be labeled a sex offender for years — it is emblazoned on his driver’s license in red block letters.

And then watch Nick describe how he had protected sex with a partner, and an undetectable viral load, and by not disclosing his status he found himself in solitary confinement for months.

Sean’s own testimony about people with HIV being viewed as “vectors of disease,” with less rights but more responsibility to disclose, and you may view this issue quite differently than you do now.

Sean has also produced a trailer for a film he is producing, “HIV is Not a Crime,” and I urge you to watch it.

I have been invited by Sean to assist him in his work for the next several weeks, and will devote the month of January to helping him establish an online resource for the issue, culminate stories of those prosecuted, and bring the maddening personal stories of those prosecuted to a broader audience.

Is your record of disclosing your status perfect? Mine isn’t. I have been a compliant patient for many years and have an undetectable viral load. There has been instances in which disclosure felt unsafe, or I was in environments such as public sex clubs in which no one is asking or telling.

I don’t believe I deserve to go to jail for those indiscretions. Do you?

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Posted in Living with HIV/AIDS, My Fabulous Disease, News, Prevention and Policy | 21 Comments »

The Value of Asking for What You Want

Tuesday, December 6th, 2011

Remember when we were little, and if we wanted something we simply asked for it? It felt easy. It seemed natural. And if there was really something special we had to have, there was a golden opportunity every year to ask the person who made all things possible. Santa Claus.

Santa ListBut then we got older, and life became more complex, and we were told it was better to give than to receive. Asking for what we wanted felt selfish, and many even a sign of weakness.

I wish we could look at this differently. Admitting we want something can be liberating. It acknowledges we are human, and there is grace, beauty even, in revealing our need and being vulnerable and allowing someone to help us.

Just because we don’t ask for toys anymore doesn’t mean we don’t want anything. We want friendship. We want to be accepted. We want our health. Maybe it’s asking a friend to listen, or wanting a medication with fewer side effects.

Just saying, I need this. I want to feel better. Or, I need you.

Wanting is not limited to children, my friends. But we might take a lesson from their transparency. Sometimes the answer, the help we need, the gift waiting for us, will only appear when we take a chance, when we finally have the courage to ask for what we want.

Happy holidays, and please be well.

Mark

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(I don’t think I’ve ever been more excited about a video blog than the one premiering here next week: The “My Fabulous Disease” Holiday Spectacular! A dozen of my relatives have come together to bring you comedy, Christmas cookies, a little drag, a visit from Santa — and some very candid feelings about loving a family member with HIV/AIDS. I hope you‘ll come back next week and meet the family! — Mark)
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PLUS…

rest area sign 1A word, if I may, about my recent posting “The Long Road Home from Relapse,” which managed to break traffic records on my blog, generate amazingly supportive comments, and also became its own source of concern among some of my fellows in recovery. As a few of the comments suggested, my drug relapse was a serious event that even I may not fully appreciate just yet, much less be able to distill its lessons to my readers. Some felt that writing about it so soon after the fact seemed cavalier. I’d like to say that my actual recovery process — the work I do on a daily basis to rebuild and maintain a clean and sober life — involves many things that are completely unrelated to my writing. It is ongoing and intimate and I take it very seriously. I considered withholding the relapse from my blog, but it just felt dishonest not to talk about it. My point is, there is work ahead for me that I hold dear and will keep to myself, my sponsor and my God. As Tony Kushner writes in the last line of Angels in America, “the great work continues.”

Nick RhoadesThe madness continues of criminalizing those with HIV who do not (allegedly) reveal their HIV status to their partners, and new cases are piling up around the country. These include many prosecutions in which protection was used and no transmission occurred. But only now have we been able to hear the voices of those who have experienced this Kafkaesque nightmare. In his upcoming documentary “HIV is Not a Crime,” AIDS activist and writer Sean Strub gives voice to the “criminals.” Their stories are riveting and heartbreaking, like that of Nick Rhoades, right. You can view a terrific trailer on YouTube, and I dare you not to let it make your blood boil, positive or not. I urge you to take a look and get educated on what is becoming a defining HIV issue for our time.

CNN ReporterDid you catch all the media attention last week stating that people with HIV aren’t taking very good care of themselves? Oh yes indeedy, the news reports, with headlines like Few in US with HIV have virus under control, and HIV Out Of Control In US Patients, seemed to suggest that it was people living with HIV who somehow haven’t been doing the right thing to maintain their health. And that’s a load of hooey, as my dad used to say. It turns out that the reports were misrepresenting a new CDC study showing that less than half of HIV patients have access to proper treatment. As in, not their fault. This distinction was made in an eye-opening blog posting by Housing Works, in which the actual study vs. the media reporting is clearly explained. “We are facing major budget cuts in homeless services, housing, testing and prevention,” blogger Kenyon Farrow states. “These all prevent people with HIV from staying healthy and make many more people vulnerable to infection… By focusing media scrutiny on government officials, the public would be better informed about who’s really ‘out of control.’”

7The Windy City Times continued a remarkable year-long commitment to covering AIDS this week, which is really a story in itself — a gay paper intent on maintaining visibility of the crisis in commemoration of the 30-year milestone. So I am especially excited that the paper chose to run a profile about My Fabulous Disease as part of their World AIDS Day coverage. Writer Joe Franco, intrepid journalist that he is, took the time to both interview me and actually watch most of my videos, if you can imagine. In his piece he manages to discuss AIDS, community, comedy, drug addiction and drag. In other words, it’s a fair representation of what you get around here on a regular basis. My mom loved it.

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Posted in Books and Writings, Living with HIV/AIDS, My Fabulous Disease, Prevention and Policy | 6 Comments »

Did I Abandon Family for Gay Community?

Thursday, October 27th, 2011

Panama City, Florida, with its sugar sand beaches and busy tourist trade, is affectionately considered the Redneck Riviera. Folks from Alabama and its neighbor states make the trip down Highway 231 and straight into the Florida panhandle, breezing through a stretch known as Watermelon Alley, where locals sell fruit and souvenirs along the asphalt in hopes of sidetracking some of the cash the drivers have saved for their weekend adventures.

ManReach GroupBut, if you were to turn northeast from Panama City, venturing further into what could be accurately called “the sticks,” you would eventually come upon the town of Vernon, home to the rustic retreat center Dogwood Acres. And it was here, deep in the woods, that I recently spent a weekend with thirty gay men from rural Florida to talk about gay community and men‘s health.

The participants taught me a surprising lesson that wasn’t about AIDS or the state of gay rights. As deeply felt as those topics are to me, something else, something completely unexpected, came up during our time together. And it made me re-evaluate life choices of mine that go back more than thirty years.

Sponsored by Okaloosa AIDS Support & Informational Services (OASIS) and
fashioned from the ManReach retreats in Colorado, the weekend asked us all to examine what “community” meant, and how to find it even when living in rural areas, as these men do.

ManReach 1We sat in circles and shared laughs and a few tears. We hiked, ate quiche and slept in cabins of unvarnished plywood. I was invited to the event to lead one of the workshops, and was the only attendee who lives in a large metropolitan area.

I became fascinated by these out, proud, engaged gay men from towns with names like Cottondale and Chipley and Lake City, towns that require several magnifications on Mapquest before you can find them. How could they possibly feel free to be themselves, to be fulfilled, to be happy? Their answers shamed my presumptions.

“I lived in big cities,” said Rick, who left one in 1985 to live on a thirty acre ranch in Altha. “I’d been diagnosed with AIDS and was given 18 months to live, and knew I wanted a different life, out of the city. I would have died there if I stayed too long.” Rick and his partner grow their own vegetables, care for horses and goats, and dote upon their two pigs, Pork Chop and Lily. “It’s a quiet, natural way of life,” he says.

David lives in Fort Walton, and offered a simply reply to my question about feeling alone in such a small community. “Isolation can happen anywhere,” he said plainly. “I’m open about being gay. I don’t hide. It’s those that try to hide and are not honest about themselves that people have problems with, if you ask me.”

ManReach 2But when explaining their choice to live in small towns, one reason trumped all others. “Family is important,” Marcus told me, as if he was surprised anyone could believe otherwise. “Roots are important.” Marcus left his hometown of Bascom long enough to attend college in Pensecola, but returned to live on his family’s peanut farm.

“This was not some kind of tradeoff for me,” Marcus said. Nor was he particularly concerned about his romantic options. “You meet people in other places nearby, larger cities. But having a boyfriend isn’t a priority right now. My family will always be.”

“I live in my father’s house,” said Ken, who lives in Wellborn, “and I take care of my mother.”

Mother. Family. The words sent a low current of guilt through me, bringing back memories of my last, dramatic days of living at home and how very far away my life has taken me ever since.

ManReach 4Did I leave Bossier City, Louisiana because of my life ambitions, or did I flee? The truth is a little of both. After a scandalous year of bursting out of the closet during my senior year of high school in 1978, all the gossip about me was wearing on my family. I knew I was causing some embarrassment. Only days after graduation I moved to New Orleans for college, and subsequent moves — Houston, Los Angeles — pushed me further and further away from them.

Maybe I kept a distance, geographic and otherwise, out of some deep shame, as if it would simply be better for all concerned if I stayed away. Or perhaps it was pre-emptive.

I’ll leave before you tell me to leave.

Through the years I collected a patchwork of close friends, and I even adopted gay catch phrases like “we choose our own families” because maybe it’s true. And then again, maybe I was comforting myself with substitutes.

When I tested HIV positive in the 1980’s, the stretches between visits grew even longer. I couldn’t bear the thought of household dilemmas — Would they watch which drinking glass I used? Should I hold the baby? — so I decided to sit out those years by visiting less, even if it meant dying a thousand miles from my nearest relative.

But make no mistake about it, my exile was self imposed. Never had anyone in my family rejected me or suggested I wasn’t welcome. They received my visits home enthusiastically, and with acceptance and kindness towards whatever boyfriend I brought along.

If anything, my visits were such a happy event that I wondered what my family was like when I wasn‘t around. Who really got along with each other, who preferred American Idol over Dancing with the Stars, that sort of thing. But when you’re visiting from across the country only once a year or so, you don’t get a sense of the day by day. No one ever gets annoyed or loses patience with you. And something about that always made me feel a little sad, as if I were company rather than family.

It was the rural gay men at the retreat who gave me a glimpse of what life might have been like, had I stayed. Minus the goats, of course. And the picture they painted looked simply wonderful.

As fate would have it, I left the men’s retreat and flew home to Bossier City for a visit. As I write this, Mother is reading the morning paper. One of my brothers has come by to join us for coffee. I’ve tried to be good about loading the dishwasher and doing chores to keep Mom off her feet.

When I presented Mother with my theory about having abandoned family in order to follow my gay destiny, she dismissed it with a smile. “You had places to go,” she said, “and everyone has a life to lead.” It never occurred to her that her love couldn’t travel whatever miles lay between us.

I haven‘t started to annoy her at all, unfortunately. But I do know who she wants to win the mirror ball trophy on Dancing with the Stars.

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Posted in Books and Writings, Family and Friends, Gay Life, Living with HIV/AIDS, My Fabulous Disease | 16 Comments »

Lessons Learned from Kissing a Straight Boy

Wednesday, October 19th, 2011

Last night I kissed a straight guy full on the lips. Then he tenderly put his arms around me and kissed me back. Tonight I’m going to do it again.

It sounds like… conquest. Or breaking a taboo. At the very least it fulfills the fantasies of many a gay man.

And it makes me wonder why.

kissThe object of my affections is a man named Travis, and he plays my lover in a play we’re performing about a gay couple doomed by drug abuse.

Travis is most certainly straight, judging by the dorm room condition of his dressing area, his raunchy jokes and the effortless masculinity he possesses and that I can only approximate.

At an early rehearsal, long before any kissing would ensue, the director motioned me aside to share some surprising words.

“Let’s take our time working up to the kisses,” said the director. He lowered his voice a little. “Travis has never kissed a man. He’s straight.” It sounded like a condition.

And in a way, it was. It immediately colored how I acted around him, on stage and off. The play covers our courtship and as we rehearsed I felt another type of courtship happening. Was he watching me, thinking that’s the guy I have to kiss? Was I masculine enough? Did he think I was cute? Did he even care if I was attractive or not? Was he disgusted at the thought of touching me?

Obviously he was comfortable enough to take the role. But to be honest, he was nervous and it showed. I finally got the nerve to say something about it during a break.

“So Travis…” I began. “You’re straight and you’ve never kissed a guy I hear.”

“Yeah, yeah,” he said. “Sorry about that.” He was actually apologizing for being straight, and I felt like doing the same thing for being gay. “I guess it’s an issue for me but I’ll get more comfortable. I did a nude scene with a gay guy before, but I wasn’t playing gay and we didn’t kiss or anything.”

This man was on stage naked and found it easier than kissing a guy? I would French kiss the entire cast and crew of “Ugly Betty” before you would find me dangling uncovered on stage.

Bringing it up helped immensely. We not only joked about his “condition,” but we also discussed mine: HIV. It allowed me to engage in some basic HIV prevention education with someone who might not otherwise get candid answers to his concerns. Yes, he knew you couldn’t get it from kissing, but hearing it definitively made him more at ease.

We made a deal that we would start kissing when we no longer needed to hold scripts, and when that time came, I didn’t hesitate. And bless him, neither did he.

It was a brief, perfectly ordinary kiss. And it was done.

Once the occasion had passed I think we both realized it was much ado about nothing. But it got me thinking about why the fact he is straight made the idea of kissing him somehow more… exciting. Why? It may be as simple as wanting what you can not have. And that’s a common desire.

It’s the other implications that bother me. Do I see a straight man as innately more appealing than myself? As better, as a more authentic specimen of Man? That would suggest I think of myself as less than ideal because of my sexuality.

Whatever the reasons, it’s not the only preconceived ideas I had about my straight co-star. I questioned if he could pull off the gay thing. Or would something, like his macho pride or his clueless heterosexuality, prevent his performance from being “authentic.”

But something happens every performance that surprises me and shames my prejudices. This lumbering straight dude who bristles when I call him “sweetheart” offstage becomes an affectionate, giving lover onstage. His eyes smile at me. He pulls me closer in our bedroom scene. He shows a sensitive, willing and playful vulnerability.

It has been an enlightening experience. I now realize how little faith I had in his talent, much less his humanity. I’m not alone. Half the cast is gay, and almost all of us play multiple roles in various sexual combinations. Between our sincere desire to understand our characters and getting to know each other, the backstage chatter runs somewhere between Dr. Phil and Jerry Springer.

We’ve all learned a lot. I learned that if something got in the way of portraying a gay couple on stage, it wasn’t the straight man’s phobias.

It was mine.

(This posting is from the December, 2007 archives, during a theater stint in my beloved Atlanta, where I will return to live in January. On another note, I thank everyone for your messages of concern and support over my recent breakup; they have sustained me during a difficult time. — Mark)

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PLUS…

Doctor picI was familiar with studies showing that attractive people tend to get favorable treatment in our society, but did you know that your likeability can affect the quality of your health care? A new posting on Klick Pharm’s blog “Digital Rx” shares a study which finds this to be true. “As an educated and knowledgeable contributor to the process the e-patient must bring forward what he or she knows,” says writer Brad Einarsen, “but it seems that it is important to do it in a collaborative and, for lack of a better term, friendly way.”

AshtonThis week in pop sleaze reports, Ashton Kutcher is still fending off rumors of a tryst in a hot tub, while his wife Demi Moore showed up at her latest movie premiere looking ghastly; her stick-thin figure reignited concerns about her health and drug use. But among all the salacious reporting was a terrific article by Jennifer Morton of POZ Magazine that carried a simple question: “Dude, Where’s Your Condom?” wanted to know why Ashton, according to the US Magazine story by his one night stand-er Sara Leal, engaged in what we gays call barebacking. “Quite frankly, whatever happens between Ashton Kutcher and Demi Moore is their business,” writes Morton. “But if Leal’s account is true and he is having unprotected sex with strangers, he’s risking a whole lot more than his marriage.”

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Posted in Anita Mann and Acting Gigs, Books and Writings, Gay Life, Living with HIV/AIDS, My Fabulous Disease | 5 Comments »

Playing the Last Scene of a Marriage

Wednesday, October 12th, 2011

“I’m not in love with you anymore.”

He said this at the dinner table as he made the first cut of his steak, a beautiful ribeye he had grilled to perfection. I put down my own knife and fork and stared at him.

“This isn’t new, or else you haven’t been listening,” he said, a bit wary of my gaze. “You knew I wasn’t happy a year ago. And we’ve just ignored it.” He took a bite and I hated him for it, for having the digestion for this.

steakI had dropped the butter, that’s how this started. I had been setting the table and I dropped the butter and it made a mess and the dogs were licking it up and he got mad. But it was an accident so I got mad too because he always seemed angry and I told him so and then I provided a litany of complaints about his moodiness and then he sat down to start eating his steak and

“Mark?”

and if I hadn’t dropped the butter we wouldn’t be having this conversation and I could keep pretending we were still in love with one another.

“Mark. I care about you. You know that. But this isn’t working.”

Twice, I wanted to say. Twice this hasn’t worked. In our nine years together, we had tried this twice. The first breakup was the result of my disastrous drug abuse. During our first four years together, I became an increasingly deceitful, outrageous mess. When at long last my pitiful lies were exposed and I checked myself into a drug treatment program, he ended it.

That time, that was the bang. This steak and baked potato dinner was the whimper.

I could feel the emotion swelling inside me and didn’t feel like being the first to cry, so I left the table for the bedroom. As I began heaving deep, guttural sobs I realized I was watching myself, from a distance, like a performance. I saw the way I held my body, arms wrapped tightly in a hug, knees bent from the force of the sobs. What’s my motivation? I found myself wondering, still in the midst of it. Why am I crying? How do I really feel about this?

No sooner had I asked myself these questions, tears streaming, that I posed another. And it was far more manipulative.

How should I play this, exactly?

There were so many options. The shocked and devoted lover. The vindictive injured party. The delicate, recovering addict, shaken to the core by the breakup.

I indulged in this sick game of posturing for only a moment, but it was long enough for me to spot my disease on display. It was my drug addict mindset, always looking for an angle, always trying to deflect blame or skirt responsibility or come out ahead. Despite three years of sobriety, that mindset still enjoys hijacking my emotions.

Mark, I muttered, my face wet with tears, stop it. You crazy fuck.

After the first breakup, he and I didn’t talk much. I moved back to Atlanta and, after some false starts, I finally got a foothold on my recovery. Life opened up again. I created My Fabulous Disease. I rediscovered my joy.

We began speaking tentatively to one another, then more often, and as I approached my first year of sobriety we finally admitted we still loved each other. It was such an unexpected turn of events, and so achingly romantic, that we both followed our hearts completely. I returned to Florida and we resumed our life together, minus my drug use and the dramatic sideshow that went with it.

And yet. And yet.

Within a year, we knew. We tried counseling, which only reopened old wounds and created new resentments. Something unspoken told us to stop the sessions, to not reach the finish line with so much misplaced anger. Instead, we coasted silently for another year, and we looked away.

The postscript had been written, like a paper holding an obituary for a movie star that will probably die soon. They’re just waiting to print it.

And now, despite my philosophical approach to this, my faith in my sobriety and my gratitude for my friends, I have moments when I am crushed with fear. Being alone. Starting over. Dating. And then there’s the HIV.

HIV likes giving a certain zing to relationships. It makes starting one rather tricky, what with the disclosure and the sexual negotiations and the vague fearfulness on either side. It loves ending them as well, but not always in the way you might think.

When HIV treatment drastically improved fifteen years ago, there were people celebrating the world over about their sudden renewed health and vitality. And they often marked the occasion with surprising pronouncements. “I’m going to live another thirty years,” one would muse to the partner across the breakfast table, “and not with you…”

Thankfully, my HIV status had no role in the breakup. But it will surely become an issue as I navigate whatever romantic life awaits me.

I dried my face and walked from the bedroom to face him again. I knew what was true, and I held on to it tightly, unwilling to play this scene for effect or advantage. And I finally grasped what an amazing, unlikely gift had been offered to me.

We should have broken up like this the first time, I realized. It should have been this way, and now it can be.

This time, I can do this gracefully.

He was sitting at the sofa and looked up to me, sadly, hopefully, and I sat down across from him. There was a moment of mutual assessment, and we saw the truce in each other’s eyes. Some of the stress melted.

And we began to talk.

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Posted in Books and Writings, Family and Friends, Gay Life, Living with HIV/AIDS, Meth and Recovery, My Fabulous Disease | 31 Comments »

Revisiting ‘The Real Poz Guys of Atlanta’

Tuesday, October 4th, 2011

During the first year of producing my blog videos back in early 2009, it occurred to me how much of my health and happiness was the result of having a solid support network. I wanted to find a way of showing this through my blog, and the result would be two video episodes that remain a true highlight of My Fabulous Disease.

Gotta Have FriendsWhat might it be like, I wondered, if I invited some friends living with HIV over to my place and the video chronicled our evening together? Was there value in showing our support and friendship? My cinema verite experiment could be inspiring… or a complete bore.

I needn’t have worried. When Craig, Eric, James and Antron arrived for dinner, they plunged into the evening with startling honesty and affection for one another. While my BFF Charles worked the camera (the man is a saint; he didn’t eat at the table with us so it wouldn’t intrude on the filming), the five of us let down our guards and shared on a variety of topics.

We talked about our mothers, and how and when we disclosed to family and friends. We talked about dating, and loneliness, and what we tell people who have just tested positive.

When “You Gotta Have Friends” was posted on TheBody.com on April 22, 2009, it became my most popular episode to date and received a flurry of comments from across the globe. So many people loved seeing a group of men with HIV supporting one another and having that level of honesty. For many viewers, simply seeing friends with HIV living happily was an inspiration.

They loved doe-eyed Antron, the 23 year old with the heartbreaking story of his mother’s reaction to learning his status. They left comments about the tattooed, sexy James, and his candid stories of sex and disclosure. Viewers loved the philosophical Craig, and his moving description of his mother’s face the moment he revealed his status, and equally, how Eric created his “HIV Team” of physicians and family to combat his disease.

As for me, I look back at this episode and wish my video editing skills were as honed as they are now, and I regret filming when my face was swollen from my initial facial filler treatment (I look like I’m welcoming you to Munchkin land). But I couldn’t have been more thrilled with the response to the video and knew that I would have to produce another episode with this amazing group.

That would happen a year later, when “The Real Poz Guys of Atlanta” was posted on TheBody.com on February 23, 2010. This time we skipped dinner and went directly to dessert, as I taught my friends how to bake my legendary brownies. Then we sat by the fire for a conversation even more intense than our last, sharing about partners lost to AIDS, our sex lives and what constituted “acting out,” and even a round of show and tell, as each of us brought something of meaning to our lives with HIV.

There’s no doubt that I will do another episode with my friends again sometime, but I wanted to update you on their lives as they are today.

Eric, who famously declined to discuss his status with most people because “I’m Southern. We don’t talk about such things,” reports that his life is getting even healthier. “I quit smoking after 32 years on tobacco, I joined a gym, I got a trainer, and I have a new consciousness on eating,” he says. “At this rate, I’m going to live forever.”

Eric is also glad that his Mom remains one of his biggest supporters. But that wasn’t meant to be for Craig, who has lost the mother he so lovingly described in our first episode. “I am still recovering from that ongoing blow and the indescribable loss” Craig told me. “She was one of my best friends and it is still hard to really accept life without her in it.” Craig continues his work as a leading voice for gay men of color and HIV prevention.

The grief is something Eric can relate to, considering the loss of his partner Maxwell, about whom he shared in the second episode. “I don’t want to forget him,” Eric says now. “It’s not really sadness, but more a sense of him that stays with me.”

Antron has stopped writing in the black journals he brought to show and tell, and uses his laptop these days. That will come in handy for the young writer, who has a new project consisting of poems, short stories and rumination entitled Ayo: Lost and Found.

The advice that Craig had for Antron to carefully consider “who he lets into his life, and into his bedroom” hasn’t been lost on Antron, who tells me, “I have a deeper responsibility to value myself more and form a beautiful relationship with me first before pursuing any one.” He is planning to move to New York in January, and maintains a blog for his writing.

The dating life that James was negotiating in both video episodes has slowed, and for some challenging reasons. “I seem to have developed a fear of discussing my HIV and HepB status with potential dates,” he says. “I’m back on interferon for another 48 week treatment.”

The grueling treatment hasn’t affected his work as a massage therapist so far, but James is vigilant about the potential effect on his recovery from drug addiction. “Friends are so important right now, making sure I don’t isolate and relapse like I did during the last interferon treatment. I am blessed to have some really great friends.”

And that sentiment is really what this project was about for me. The healing grace of our friends, and how that support comes in handy during trying times.

Do you have a strong circle of friends who know your status or otherwise have your back? I’d love to hear some of your experiences and what you might advise someone who is considering whether or not to disclose their status to their social circle.

In the meantime, my dear friends, please be well.

Mark

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Posted in Family and Friends, Gay Life, Living with HIV/AIDS, Meth and Recovery, My Fabulous Disease | 4 Comments »

Why Are We Still Haunted by the Boys in the Band?

Tuesday, June 21st, 2011

When I was 15 years old, I couldn’t wait to attend a local community theater production of The Boys in the Band. I was intrigued by the play’s dark and mysterious reputation, and had heard that it included a lot of homosexuality (funny how that word isn’t used much anymore). It sounded like exactly what this budding young queer needed: some lessons about the yellow brick road ahead.

BAND castI didn’t like what I saw. The characters, a group of gay men celebrating a birthday, were mean and sad and angry with one another. And they were all presented like weird, exotic animals, bitching and crying for the lascivious thrill of a very shocked audience in Shreveport, Louisiana. I left the show feeling terribly disenchanted, fearing my life was destined to be drunken and pathetic.

It was the theatrical opposite of an It Gets Better video.

In the insightful and appropriately melancholy new documentary Making the Boys, the remarkable journey of the groundbreaking play and movie adaptation is discussed by playwright Mart Crowley and a host of gay cultural voices, old and new.

makingtheboyssplashWhen The Boys in the Band opened off-Broadway in 1968, homosexuality was still classified as a mental illness. The play’s behind-the-scenes peek at gay men in their natural habitat was fascinating to audiences and greeted with enthusiasm from the gay community. Yes, they were maladjusted, self hating fags, but they were our maladjusted, self hating fags.

But in 1969, as the movie version was being filmed only blocks from the Stonewall bar, a riot occurred at the club in response to constant police harassment. The modern gay rights movement was born. Seemingly overnight, New York gays stood up for themselves and demanded some respect – from others and, more importantly, themselves. By the time the film version of The Boys in the Band opened in 1970, the story and its sad characters felt like a politically incorrect relic. We wanted nothing to do with these old, bitter friends anymore. They didn’t reflect our “pride.”

Opinions about the show vary wildly, as evidenced by the interviews in the documentary. Gay playwright Edward Albee (“Who’s Afraid of Virginia Wolfe?”) always hated the show and still does. The surviving actors (the theatrical cast all recreated their roles for the film) staunchly defend the humanity of their characters. And younger gays interviewed about the show have no idea what the hell we’re talking about. “I don’t really know about any boys in the band,” states perplexed fashion star Christian Siriano. “Honey, I’ve got dresses to make!”

The Boys in the Band has become a litmus test for how you view our ability to love ourselves. And those boys continue to reverberate and reflect our attitudes and tribulations as gay men, and that includes the AIDS crisis.

LA la-et-making-the-boys.2.jpgWatching the film today, I’m struck with an odd compulsion. I see these characters laughing and bitching, and I want to reach through the screen and shake them and warn them, to tell them about something coming, something too awful to describe, of a plague they can’t possibly comprehend that is coming to kill them all.

Indeed, at one point in Making the Boys, we are shown photos of the actors, of the men who played these iconic characters we loved and then hated and then, finally, simply accepted. And listed under each of the actors’ names is the year he died of AIDS. 1984. 1985. 1988. On and on it goes, through what appears to be a majority of the cast.

The moment brings about such emotional confusion, of regret and interrupted affections. It’s like hearing of a death of a long lost friend with whom you had a troubled relationship.

Our boys continue to live on through the film, performing their roles on that screen exactly the same way, defiant in their stereotypes, no matter how many times we revisit the movie.

What has changed, for better and for worse, is us.

—————————————————–

PLUS…

celluloid-closet1You know who would probably have had some choice words to say about this blog posting if he were still alive? Vito Russo, author of the milestone book on gays in film, The Celluloid Closet. On the occasion of the 30th anniversary of the book’s publication, writer Mark Adnum provides a provocative re-examination of the book and the attitude of its author. And to hear Adnum tell it, Russo was a hard-to-please bitch who happened to address the topic of gays in the movies at the right time (although others were there first, according to Adnum). This, from Adnum’s piece: The Celluloid Closet is saturated with frustrated references to “tortured little gay boys,” “homosexual fools,” and “sad-eyed queens.” Russo couldn’t stand “screaming queens” or “doe-eyed, timid faggots,” yet oddly “self-hating gays” really rubbed him the wrong way also. Ouch. So, was Russo a gay activism icon, or just another bitter boy in the band?

Hope Takes ActionHVTN 505, also known as the HIV vaccine clinical trial, continues to struggle to find study participants, and that’s a shame. You know I never miss an opportunity to encourage HIV negative gay men and engage them in the HIV/AIDS arena, and this is the best possible way in which they can make a difference to public health. But… maybe they just aren’t sure what is involved. Well, Kyle Bella outlines his experience as a trial participant in great detail in a recent Bilerico Project posting — from the criteria to the risks to his physical exam — and it’s great information for anyone who might be interested. And be sure to visit Hope Takes Action to browse the list of trial sites.

Elton PetitionThe ADAP Advocacy Association (aaa+) has a new petition that is easy to access and sign — and it adds your voice to all of us who are horrified about this national disgrace. Most recently, Sir Elton John joined the chorus of advocates demanding that Gov. Rick Scott of Florida do something to alleviate the waiting list (there are more than 3500 patients in Florida alone who are waiting to participate in this program). So… just click here to sign a petition at the Elton John AIDS Foundation, asking that ADAP get the funding it desperately needs.

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Posted in Books and Writings, Gay Life, Living with HIV/AIDS, My Fabulous Disease | 10 Comments »

The Dirty Little Secret of Gay Men and Meth

Monday, June 20th, 2011

How addiction to crystal methamphetamine is threatening the gay community’s long struggle to turn a corner on the AIDS epidemic.

I really shouldn’t be trusted. That’s the problem with drug addicts like me. We’ve protected our addiction through a myriad of lies and manipulations for so long that being truly honest again is like learning a foreign language from scratch. So when, at long last, my recovery has convinced me that honesty is the only thing that can save my life, I shouldn’t be surprised that my friends are reluctant to believe me.

newsweek_logo JPGTheir skepticism is well founded. My drug addiction perverted every value I hold dear, and truthfulness was the first to be abandoned. But becoming a habitual liar was only the beginning. As a gay man I worked tirelessly through the 1980’s directing AIDS agencies and advocating HIV education. Despair was a daily companion, and I witnessed the death of friends in manners too gruesome to be described. When I became HIV positive during those early years, every loss of a friend, every visit to intensive care, was like watching my own morbid future.

But once my addiction to crystal methamphetamine took hold by the late 1990’s, caring for my community or even myself had become unaffordable luxuries. The drug, a common presence on the dance floors I once enjoyed, had tightened its hold on me. I was no longer satisfied with occasional weekend use and pursued meth with a vigor unmatched by my devotion to AIDS causes.

This onetime HIV educator became a selfish addict who engaged in perilous drug deals and even riskier sex. The sad irony escaped me, however, as I continued down my destructive path, even contracting Hepatitis C through needles and enduring chemotherapy to treat it. All the while, my addiction raged on.

My experience isn’t unique and widespread meth abuse has been brewing in other populations for some time. But something about its peculiar grip on gay men feels all too familiar, like a dreadful echo of what we suffered a generation ago. And the implications have me worried.

Most of my peers remember what it was like in the early 1980’s, when friends stopped calling or simply died over the weekend. The nightclubs were cloaked in sadness and had a vaguely sinister vibe. Empty desks at work meant someone was mysteriously sick again. During those years of “gay cancer,” we were too petrified to acknowledge the coming storm.

Binder5Today those ominous signs have returned, along with the helpless wish that things will improve if only we don’t speak too loudly about it. But rather than AIDS picking off my friends with random cruelty, meth addiction is the culprit. And this time, it is unlikely our community emergency will have ribbons and walk-a-thons or attract research dollars. Society’s sympathy for men dying from drugs is quantitatively less than dying of a sexually transmitted disease. This really is a plague of our own design.

Recovery centers are teeming with gay men battling meth addiction, and the drug has a very tight, culturally specific hold on them. It has surpassed other illegal substances as the drug of choice among gay users. There is something about the drug’s mystique as a sexual liberator that appeals to men who are so often judged by their sexuality. Just as I once did, countless men are abandoning their relationships, their careers and their personal dignity in pursuit of the insidious thrill the drug promises and never delivers.

And meth appears to be mocking my community’s long struggle to turn a corner on the AIDS epidemic. HIV testing sites claim that meth users are five times more likely to test positive for the virus than non-users.

How to combat the growing threat has this activist at a loss. Gay men know we had compelling prevention campaigns for HIV in the early days. They were called funerals. But changing an addict’s behavior is a much more ambitious challenge than changing basic sexual practices.

It was my goal to bring attention to this crisis when I agreed to appear in a recent documentary about gay men and methamphetamine (Todd Ahlberg’s startling “Meth”). In the film, I represent the voice of reason, the recovering addict remarking on what a sad scourge the drug has become. Only after the documentary was produced did I admit to anyone that I had relapsed prior to filming and had stopped using meth only hours before the camera crew arrived. Once again, my actions trumped my ideals.

It has been baffling to find myself literally saying one thing and doing another. The facts don’t lie: I have been working towards recovery for five years and my last relapse was only four months ago. The eight years I spend addicted to meth will leave scars. Thank God for the recovering addicts I have met along the way, who have shown me that long term success is possible if I will just “get honest” and hold myself accountable. My personal survival is the job at hand.

That’s tough for a former community leader to accept. I want to sound the alarm, organize a response, and join the growing chorus of gay men shedding light on our shameful secret. But how can I urge others to practice honesty when it has eluded me again and again? And what did the AIDS crisis teach me, what did the promises to honor the lives of so many dead friends mean, when I rewarded my miraculous survival by sticking needles in my arm?

I better sit this one out. The preciousness of life itself, and my own in particular, is a lesson I should have learned while caring for my friends dying of AIDS. It has taken a battle with an equally cunning adversary for that lesson to finally sink in.

(This piece appeared on Newsweek.com on November 28, 2007. My struggle with crystal methamphetamine continued, until finally getting clean and sober in recovery on January 1, 2009. — Mark)

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Posted in Books and Writings, Gay Life, Meth and Recovery, My Fabulous Disease, Prevention and Policy | 3 Comments »

My Surprising Lack of Gay Pride

Tuesday, June 7th, 2011

For most of my life I’ve been judgmental and a little impatient with gay people who didn’t just come out. Are the risks really that dire? I suspected they were just chicken shit, or unwilling to stand up to their family or to whatever screwed up religious upbringing they had.



Growing up on Air Force bases
wasn’t exactly the Castro, but I didn’t know any better than to walk and talk however I pleased (I was in full sashay mode by the age of twelve). I was sexually active soon thereafter, and stunned my Louisiana high school with an older boyfriend in my senior year.

MarkInRepose - CopyYes, I grappled with my Methodist teachings and suffered through some brutal rounds of dodge ball (affectionately known as “Smear the Queer” where I come from), but making it though my teens was mercifully uneventful.

The bullies were too freaked out by my jumpsuits and platform shoes to approach me, though I must credit my perpetually embarrassed, varsity jock brother for helping keep them at bay. The result of this rather fortunate gay adolescence was my ignorance of the perils of being out, and that arrogance suited me just fine for most of my young adulthood.

And then, years after my own coming of age, Matthew Shepard tried to live openly as a young gay man, too — until he was beaten and left to die tied to a fence in Wyoming. The images and details of his horrific final hours were like blunt force trauma directly to my heart. How could I have been so cavalier about what the real costs of coming out could be?

Today, I never downplay the societal risks of being gay, but I focus my writing on two things that added shameful layers to my identity: HIV and drug addiction. How ironic that the kid who believed there were no dangers to growing up gay would fall victim to two of the most common health risks among gay men: being infected with HIV and using drugs.

I’m still a sashaying, gay stereotype representing the most fabulous social ills, it would appear.

My sense of pride emerged not in response to being gay, but in my response to HIV and my drug addiction, in that order. I found personal self worth by helping my community face AIDS in the 1980’s, and I have rediscovered my self esteem while on the treacherous road back from crystal meth addiction.

Being gay isn’t something I have been proud of, in and of itself. But I take pride in how I have handled what I consider the fallout of being gay.

During this gay pride month of June, I hope we’ll all take some time to assess what we’re so damn proud of. I’ve made that list, and “being gay” isn’t anywhere on it. Do I take my sexuality for granted, or am I ungrateful?

I’m proud of Mark, the man as he is today. I’m proud of my brother for keeping the bullies away. And I’m proud at my success, day by day, of recovering from addiction and having a purpose.

With that, I’ll sashay out of here.

Mark

(The video above is a gay pride message I produced last year, and I would encourage you to watch it. What begins as a funny take on public service announcements becomes something surprisingly different and emotional. As always, my friends, feel free to share my content, and please be well.)

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Posted in Books and Writings, Family and Friends, Gay Life, Living with HIV/AIDS, Meth and Recovery, My Fabulous Disease | 12 Comments »