Posts Tagged ‘recovery’
Sunday, March 24th, 2013
I have some amazing friends for you to meet.
Beginning two years ago, TheBody.com asked me to produce a series of videos (“A Day in the Life: Keeping Up With Your HIV Meds”) that would profile a person living with HIV, what their day looks like, and how their medication regimen fits into their daily routine. It was a great opportunity to highlight the everyday lives of people living with HIV, but also to let their spirit and passions come through, and show we are whole people — not simply the virus.
The profile subjects came from all walks of life, in various cities around the United States, and their personalities and interests — their families, their hobbies, and even how they became HIV positive — were all I needed for inspiration.
Below are the eleven videos that have been produced to date for the series (an ongoing feature on TheBody.com and they also have an entire resource center about keeping up with your meds). You can watch the videos here, or follow the link in the title to view the post as it appeared on TheBody. They are each less than ten minutes long; just scroll through them below and find a story that sounds like yours — or better yet, hear what the journey of someone completely different from you is like! Are you ready?
Damaries is from South Florida and could not have been more lovely; we laughed a lot during our day together. Her strength is what impressed me most: she did not come to the decision to start HIV medications lightly. She really did her research before she began a regimen. Filming her story was also a great excuse to hit the beach, since she loves to find her peace and tranquility on that gorgeous sand.
Well, first of all, Tree is adorable. So there’s that. He also has an equally adorable dog, who tried mightily to extend his few minutes of fame by sneaking into the camera shots and barking woefully from the other room. For his part, Tree does a great job explaining how he kept his medication regimen despite multiple moves and even being homeless for a brief period. I really like the Brooklyn montage of Tree’s neighborhood at the beginning of the video.
What an elegant woman Eva is. She was so gracious during our day together and had an almost regal sense of self. She really impressed me. Not only did she make peace with the man who infected her many years ago, she became an advocate for all women living with HIV and devoted quite a lot of time to volunteer work. She’s also an avid traveler — I’ve never seen so many magnets from exotic places on one fridge in my life.
What a hoot! Robert (Bobby) Darrow and I were childhood friends, when we both performed in community theater together in Shreveport, Louisiana (we were both newsboys in Gypsy, for all you musical theater queens). As we grew, he always got the good parts and I ended up working the spotlight — shining it on him — but I’m not bitter, I swear! Producing this video was a great chance to honor my lifelong friend for the activism he has done since the beginning of the AIDS epidemic. And it also allowed me to honor theater itself, and how Bobby is now back in the very place he and I so loved when we were kids. This one is special to me.
You’re going to be blown away by the strength of this woman’s convictions — and the strength of her marriage. Brooke learned she was HIV positive during her pregnancy, and not only was her husband completely supportive, he stood by proudly as Brooke became a visible advocate for woman’s health, the importance of HIV testing, and their personal struggle to afford HIV medications so that their baby would have a better chance of being born without HIV. And speaking of babies, guess who steals the show in this video?
Khafre was one of the most immediately spiritual people I met during this series. He has a very strong sense of faith and a commitment to his own spiritual principles. He was also in the midst of organizing a fund raising bike ride across the country to benefit HIV/AIDS services for people of color, and I admired his dedication and pure energy. The time he devoted each day to prayer and meditation was really lovely to observe and capture in the video.
Petra & Efrain could give the other couples in the series a real run for their money for the title of Most Romantic. You can’t help but grin, watching Efrain describe seeing his future wife for the first time at an AIDS conference, where both were community advocates and both were living with HIV. They not only lift up one another during the frustrations of HIV life, they know how to take time to love and enjoy one another, as their salsa demonstration clearly shows.
Tales of triumph over adversity don’t come more dramatic than the story of Fortunata. Not only is she the single, proud parent of a gorgeous daughter (the apple doesn’t fall far from the beauty tree), she had a devastating accident when she was hit by a car walking across the street — and then had to manage her HIV meds along with a host of others while she recuperated. The fact that she relates all this with such grace was amazing to me. I had so much footage of her simply looking ethereal and lovely, the video could have been twice as long.
Anyone who follows my blog — or HIV/AIDS advocacy — knows what a gift Nelson is to our community. He’s been our own Jack LaLanne of HIV, teaching the importance of health, exercise and nutrition since the beginning of the epidemic — the video blogs he did with me on nutrition (where he cleans out my fridge) and exercise (where we hit the gym together) are hilarious and very informative. And, of course, he has a hot body. It might come as some surprise, then, that he’s very modest when it comes to showing it. I had all sorts of shots and angles I wanted to do that would have shown of his physique, and he politely demurred. He also was always focused in our interview on what would apply to regular folks living with HIV, rather than the more privileged among us. In other words, the man is a class act, with a humility that speaks volumes about his integrity and commitment.
I’ve been watching Robert grow as an HIV/AIDS advocate for several years now, since he began POZIAM social network and radio show while still in his twenties. I had fun doing the fast cuts that open his video because I thought it captured the sense of motion and vitality he has. When I become disheartened, wondering where are the next generation of activists on the scene, I remind myself there are people like Robert.
I’ve always been open on my blog about being in recovery from drug addiction, and George — who survived 27 years of street drugs — and I had an immediate connection. He devotes his life today to service for others, whether it is at an AIDS agency or through various addiction activities. In fact, something he said about his recovery during our interview really made sense to me, and I stopped the camera and shared some of my own story. For nearly thirty minutes he let me pour out some of my own fears and challenges, and listened with the attention of a man who has been there. I think his spirit is well-represented in this video.
To watch George’s video, just follow this link to TheBody. This video is so hot-off-the-presses that I’m not able to share it here yet. Follow the link and hear his story.
I learned a lot of each of these people, and I know they represent a tiny fraction of the courage and daily fortitude displayed by people living with HIV every single day. I really want to thank this group for taking me into their homes and lives and allowing me to share their stories with you.
Thanks for watching, and please be well.
Tags: aids, gay, help others, hiv, lipo, physician, recovery, research, Sexuality, testing
Posted in All Other Video Postings, Gay Life, Living with HIV/AIDS, Meth and Recovery, My Fabulous Disease, Prevention and Policy | 1 Comment »
Wednesday, January 2nd, 2013
“My most courageous self, the best man that I’ll ever be, lived more than two decades ago during the first years of a horrific plague… I miss the man I was forced to become.”
– “Once, When We Were Heroes,” 2007
AIDS did not kill Spencer Cox in the first, bloodiest battles of the 1980’s. It spared him that.
The reprieve allowed Spencer’s brilliance as co-founder of the Treatment Action Group (TAG) to forge new FDA guidelines for drug approval and help make effective HIV medications a reality, saving an untold number of lives.
Such triumph by a man still in his twenties might have signaled even greater achievements ahead. Instead, Spencer found himself adrift in the same personal crisis as many of his contemporaries, who struggled for a meaningful existence after years of combating the most frightening public health crisis of modern times.
Gay activists like Spencer were consumed by AIDS for so many gruesome years that many of them were shocked, once the war abated, to see how little around them had changed. Climbing from the trenches, they saw a gay culture that must have seemed ludicrous, packed with the same drug addictions, sexual compulsions and soulless shenanigans that AIDS, in its singular act of goodwill, had arrested for a decade or so.
They found themselves in a world in which no one wants to see battle scars, where intimacy is manufactured on keyboards and web sites, where any sense of community had long since faded from the AIDS organizations and now only makes brief appearances in 12-step meetings, or as likely, in the fraternity of active crystal meth addicts chasing deliverance in a dangerous shell game of bliss and desolation.
The dark allure of meth, a drug so devoured and fetished by gay men today that it is now a leading indicator of new HIV infections, enticed Spencer at some point along the way. The drug is known to whisper empty promises about limitless power and sexual escape, while calming the addict’s ghosts and sorrows for miserably brief periods of time.
When Spencer Cox died on December 18, 2012, in New York City, the official cause of death was AIDS-related complications, which is understandable if post-traumatic stress, despair and drug addiction are complications related to AIDS.
Spencer believed that this connection exists. His own writings for the Medius Institute for Gay Men’s Health (an organization he co-founded after his work with TAG) focus on exactly the issues that were distressing him personally: Crystal meth abuse. Loneliness. Risk taking. Feelings of confusion after years of accomplishment and purpose.
In retrospect you can read his work and break the private code written between the lines. It spells out “HELP ME.”
Spencer’s life during this period and beyond was difficult, by many accounts. The Medius Institute failed due to a lack of funding, defeating Spencer’s effort to address mental health issues among gay men. His drug addiction spiraled and ebbed and raged again, until he finally retreated to Georgia to live with family for a few years.
When Spencer returned to New York City last September, many of his closest friends had lost track of him. There is uncertainty about his last months, and no evidence that his addiction was active, but what little medication compliance he managed had been abandoned completely, setting the stage for his final hospitalization.
Spencer Cox died without the benefit of the very drugs he had helped make available to the world. He perished from pneumonia, in an ironic clinical time warp that transported him back to 1985. It was as if, having survived the deadliest years of AIDS, having come so close to complete escape, Spencer was snatched up by the Fates in a vengeful piece of unfinished business.
AIDS has always been creative in its cruelty. And it has learned to reach through the decades with the second-hand tools of disillusionment and depression and heart-numbing traumas. Or, perhaps, using the simple weapon of crystal meth, with all of its seductions and deceits.
Yes. There are many complications related to AIDS.
To consider “survivor’s guilt” the culprit behind the death of Spencer Cox is a popular explanation but not necessarily an accurate one. That condition suggests surviving when other, presumably worthier people, did not. Sometimes guilt has nothing to do with it.
For many of our AIDS war veterans, the real challenge today is living with the horror of having survived at all.
(PHOTO CREDIT: Walter Kurtz)
Tags: aids, culture, hiv, meth, physician, politics, recovery, research, Sexuality
Posted in Books and Writings, Gay Life, Living with HIV/AIDS, Meth and Recovery, My Fabulous Disease, News, Prevention and Policy | 50 Comments »
Monday, October 22nd, 2012
The story behind the title of Michael Kearns’ memoir The Truth is Bad Enough is as delicious as the title itself. As Kearns’ parents – themselves worthy of a Tennessee Williams subplot — battled each other at their divorce proceeding when Michael was a child, his father presented damning surveillance of his mother’s many infidelities. The evidence was unimpeachable, but then the father tried raising the stakes by charging that the woman also physically abused him.
Kearns’ mother couldn’t be contained and interrupted the proceedings. “Your honor,” she said. “Why is this man lying? The truth is bad enough!”
The truth is sometimes difficult, to be sure, but in the case of this engaging and fast moving autobiography, it’s also hilarious. There’s nothing more formidable than a drama queen with legitimate drama on their hands, and the life of talented, alcoholic, HIV infected, highly theatrical and perpetually horny Michael Kearns has had more peril than an Aaron Spelling series.
Kearns began his career in the midst of the “gay lib” of the 1970’s even if Hollywood was tight lipped on the topic, and it is that disconnect that pushes the openly gay Kearns into an unintended activist role and confounds his career aspirations.
After a featured role playing the older brother of John-Boy on The Waltons, Kearns’ future seemed secure. But test audiences reacted poorly to their scenes together because they showed the characters away at college. Kearns’ character never appeared again. Rumors that he was fired because he was openly gay were untrue but persisted for years.
Meanwhile, Kearns had a boyfriend who had written a fictional book called The Happy Hustler, and for which Kearns had modeled for the cover image. In order to generate book sales, a plan was hatched to present Kearns as the actual Happy Hustler – the book’s author – and send him on a press tour. Having been banished from Walton Mountain and still hungry for stardom of some kind, any kind, Kearns agreed to take on the counterfeit persona as a sort of exercise in ongoing performance art.
Keans’ drunken appearance as The Happy Hustler (a role he began taking far too literally in his private life) during a 1976 Tom Snyder interview sets the stage for both career success and life on a runaway crazy train. Kearns revels in drug and alcohol abuse as tricks and acting jobs come and go. He sleeps with celebrities and strangers with equal apathy. His status as the first openly gay actor of note invites curiosity and derision. He agrees to reveal his HIV positive status for an NBC interview almost as a lark, leading to a period of portraying “the gay guy with AIDS” in a collection of acting gigs.
I was drawn to Kearns’ story for the Hollywood gossip –– but I kept reading because of something deeper and far more riveting. And it had everything to do with how our lives were fated to overlap.
My own memoir A Place Like This travels some of the same West Hollywood streets. I was a bottom-feeder on the Hollywood scene (an expression I should probably withdraw now for its literal inaccuracy) and I never knew Kearns, but we did have a liaison in common: our bedding of the detached and unhappy Rock Hudson. However, let the record show that while Kearns’ dalliance was what gay men refer to as “standup sex,” mine was brief but at least horizontal. So, um, I win.
Many other famous faces populate the book – gay, straight, porn stars of various stripes, and the hypocritically closeted that Kearns, God bless him, outs on his pages with regularity. His characterizations of personalities we thought we knew are enlightening, gentle when need be, and sometimes quite sad.
The funny but famously acerbic Paul Lynde was kind and helpful to Kearns. Stage legend Leonard Frey (birthday boy Harold from Boys in the Band) sat despondently during a sexy gay house party, where looks trumped celebrity. The “monstrous” Charles Nelson Reilly was so threatened by Kearns’ sexual identity that he cut short their visit in Florida to work on a project, throwing Kearns out of the guest house and squawking insults from the porch in his orange caftan as Kearns was driven away.
And then, Kearns’ story includes a bizarre intersection between us that I found so revelatory and disturbing that I had to actually put the book down for several days while I reexamined an entire section of my life.
During the 1980’s I owned a gay phone sex company, Telerotic. It predated party lines and the internet; customers called our office and “ordered” the type man they wished to speak with, and one of my employees (struggling actors, every one) would call back the customer and take on the persona of whatever the client had ordered. I had opened the company after working for a competitor and discovering I was a very popular choice among the clients and had, well, a way with words.
One day, playwright James Carroll Pickett contacted me. He wanted to interview me, observe me doing calls with clients, and get a feel for the business as research for a play he was writing. We spent a few evenings together, as I answered questions, smoked cigarettes, made funny faces while talking to clients, and snorted copious amounts of cocaine in my bathroom.
Months later I attended a performance of Dream Man, which would become the most heralded collaboration between the playwright and his theatrical partner, who performed the role of the phone sex caller in the searing one-man show.
The actor was Michael Kearns.
Watching the performance nearly thirty years ago was a surreal experience, but it was the playwrights inclusion of the mechanics of my nightly calls that were so striking to me: the rolodex box filled with client notes, the gimmicks I used to appear more engaged than I actually was, my tricks to get the client to call again by teasing him with an upcoming sexual adventure I wanted to be sure to share with him.
And I missed the point entirely. It wasn’t until I read Kearns’ book that the facts of the character he portrayed came into view: an isolated, frenzied and increasingly unhinged gay man with no prospects or esteem, playing to an audience of one – whatever desolate client he could hold hostage during their phone call.
The play was an aria of anguish, but all I could focus on during that performance so many years ago was the damn rolodex cards. I was incapable of facing the “dark density” of the character, because if I scratched its surface I would have clearly identified the drug addicted, desperate young man that the playwright had come to interview. And I may have revealed far more to him than I ever imagined.
Dream Man would be performed across the country, in Spain, Ireland, Germany. And through those years I continued my destructive path, having lost an opportunity for my own moment of clarity in the dim light of that West Hollywood playhouse. Reading about it now, in this book, rattled me to the core, and the book sat untouched on my nightstand for several days.
The last third of the book focuses on Kearns’ adoption of a baby girl born to a crack addicted mother, his selfless love for her, and how their bond throughout her upbringing conjures everything from his fears of AIDS mortality to his unresolved issues with his own troubled parents. These pages are filled with a grace and maturity that are miles away from the drug- and celebrity-induced selfishness of his life thus far, as Kearns gently guides the reader down to earth, into the bosom of family, after pages and years of breathless shenanigans.
“Acceptance is the answer to all my problems today” is a common refrain among those, like Kearns, dealing with recovery from drug and alcohol addiction. His book is imbued with that acceptance, just as reading it allowed me to accept whatever part of me was on display in the lonely, reckless stage creation Kearns most famously brought to shattering existence.
Friday, September 28th, 2012
There is a folder, tucked within a folder, buried deep in my computer files. I shouldn’t be looking at its contents, yet I can’t bring myself to delete it altogether. It is labeled MARCUS, and inside the folder is my disease.
During my years of crystal meth addiction I went by the name of Marcus, at least to dealers and tricks and fellow addicts. It helped me determine who was calling my cell phone — those calling for Mark or Marcus usually had very different agendas — and Marcus even became an alternate persona as my drug addiction progressed.
When partying as Marcus, I felt confident and aloof. I took awful chances. I never met a strobe light I didn’t like or a box on a dance floor I wouldn’t jump on. A steroid-crazed gym regimen and the dehydration of drug abuse transformed my body into the low fat, pumped up gay ideal.
Photographs of that body, in full, preening strut, are the contents of the MARCUS folder. The pictures were my calling card for online sex-and-drug pursuits. They suggest nudity but are cropped modestly — although God knows that much more damning images of me surely exist in the dark corners of cyberspace.
In one of the few pictures showing my face, I stand under a running shower — a pitiful Playgirl pose, spray nozzle in hand — with a blank face and shipwrecked eyes. The only emotion on display, just around the edges, is a dull fear.
My life was precisely as pictured. It wouldn’t be long before my drug use trumped my gym schedule, and my status in online chat rooms devolved from intriguing hottie to that crazy mess that doesn’t look like his pictures.
Since then, my recovery from drug addiction has helped me understand that the Gay Strut is key to my disease. It is a sly porthole back to raging insanity.
Explaining all this feels idiotic. What vanity I possess, asking you to gaze upon my former, overwrought beauty as I complain about the consequences. It feels like an invitation to tell me how much healthier I look now, or that recovery is “an inside job.” I know this. I’m just sharing the curious road that got me here.
My recovery depends on healing my mind, body and spirit. At the moment I’m two out of three.
My spirit is happy today. My smiles are joyful and plentiful. My mind is clear, although I don’t kid myself, there are remnants of a brain pickled in methamphetamine for many years. But healing is underway, and my mind and spirit are enjoying the process.
Only my body lags behind, injured, resentful, and suspicious of the path to well being. I’m sedentary and stubborn. I relate being physically fit with something traumatic that once hounded and eventually ruined me.
I want to be healthier, and to control my weight and rising cholesterol. I need to fix this, I tell myself, but I’m afraid to fix this. There’s the potential that I’ll go back to a lifestyle more horrible than my expanding waistline.
It’s good to get in shape again, I tell myself with sincere intentions. The treadmill is really taking off the pounds and I should start weight lifting again and hot damn, that muscle recall really works just look at my arms and I should buy new tank tops and work out even harder and get steroids prescribed again and what’s wrong with hanging out at a bar shirtless and shooting pool and sure I’ll do one hit of that, thanks, and man this body of mine would look damn hot at a sex party right now and who’s your dealer and do you have needles…?
Getting back in shape is an easy call. Except my mind puts physical fitness on the same crazy train as my drug addiction.
There is a solution. There always is. And I’m working on it. The fact I acknowledge my insanity is a good start. Now I can begin the process of teaching my body new tricks.
There are traps on the road to recovery, as anyone getting clean and sober will tell you. I’m much better at seeing them clearly than I used to be. But the vigilance it requires is a full time job.
I get afraid that a dangerous choice might look perfectly innocent. Or be a reasonable part of life. It could be a healthy choice, even, at least for you.
But sometimes, my very reckoning can look as pretty as a picture.
This piece originally appeared on my blog last year, and is featured in Trevor Hoppe’s upcoming book, Beyond Masculinity. I felt obliged to show some of the Marcus photos, but have cropped and altered them into something less decadent. Any similarity to pictures you may have seen in online chat rooms is purely coincidental. This topic is also something I’ve done my best to separate from my series of fitness videos with expert Nelson Vergel. Why burden the guy with my insanity? — Mark
Tuesday, July 31st, 2012
AIDS2012 was exactly as I had hoped: an enormous “summer camp” for advocates from around the globe, and I had a blast bringing their stories to you. Let others cover the medical updates and the big name speakers. I wanted to give you a sense of the people who are doing the work on the front lines – with a few bigwig interviews along the way.
Every day I sought out stories I thought would interest you and took a ton of footage (with the help of my talented camera person and schlepper Tina Robles). After a bite of free food from whatever reception was happening, I tried to make it to at least one evening event. And then back to my hotel, where I reviewed the footage, did my best to conceive a theme for the day, and then started editing. I’m quick at the editing part, but it still took 4-5 hours, into the wee hours of the morning. Then I’d sleep for a couple hours and start again. I’ll need the two years between now and AIDS2014 just to catch up!
Here are links and a review of each of the six video blogs I produced during the week. Simply click the title to see the posting and watch the video.
Since less than 5% of the programming for AIDS 2012 is targeting to MSMs (Men who have Sex with Men), a special one-day pre-conference is held the day AIDS 2012 convenes to address the needs and issues of this population.
My report includes a chat with United States Rep. Barbara Lee (right), who has just introduced comprehensive HIV prevention and anti-stigma legislation; the advocates fighting laws that criminalize people with HIV (like Sean Strub and Edwin Bernard), a little social research on Grindr (the gay man’s cruise phone app), a chat with Positive Frontiers editor Alex Garner about getting rejected (and rejected others) during the dating process, and a visit to an AIDS2012 Reunion poz social event.
In this brief video episode from the first official day of AIDS2012 the party is rolling, with an outdoor concert (steps away from the AIDS quilt) featuring Weyclef Sean and Cornel West (!), dancing dignitaries, and a somewhat surprise ending!
The fact is, Day One was a light day, the calm before the storm, as people poured into DC and braced themselves for the busy week ahead. And it was my last chance to get a decent night’s sleep.
I spent some time in the exhibit hall critiquing the fashions (and the issues) of various attendees with fashion maven Jack Mackenroth (poz and proud veteran of “Project Runway”), started a YouTube rivalry with inspirational singer Jamar Rogers (“The Voice,” right), and learned about HIV and aging from an expert with the Terrence Higgins Trust. I also had the chance to speak with the head of the CDC’s HIV/AIDS Division about their new “Let’s Stop HIV Together” campaign, in which Jamar and myself both participate.
And, with all the talk at the conference about the devastating effects of HIV stigma, I found validation of my own HIV status in the unlikeliest of places: the Gallery Place subway station.
Several contingents marched and protested separately throughout the city – marching for housing, and civil rights, and in protest of the pharmaceutical industry’s “intellectual property” policies – and then convened in front of the White House. Whereas the march and rally at AIDS2010 in Vienna was a peaceful affair, our proximity to the White House, the aggressive crowd and the police on horseback all lent an air of old time activism circa 1987.
The people included in the video can speak for themselves, and quite eloquently. Maybe it was the emotions of the event — anger, nervousness, pride — but it was an exhausting day. I felt the residue of grief for lost friends in a way I haven’t experienced in years.
This is my favorite, no doubt, and I’m proud of the visual and audio techniques I employed to give some historical context to the event.
It was time for a tour of the heart and soul of AIDS2012: The Global Village. This massive hall is the only part of the conference open to the public, and it has a grass-roots feel, crafted from the love and devotion of hundreds of community groups who are doing “the work on the ground” in cities and small towns throughout the world.
Thank God I’m a video blogger, because words escape me when trying to describe the colors and displays and most importantly, the committed people behind it all. You’re about to meet drag queens who make their living handing out condoms, sex workers demanding an end to criminalization, young prevention workers from far-flung corners of the planet, a stunning photo exhibit from the Ukraine… the list goes on.
Our little summer camp for global AIDS advocates (and physicians, and commercial interests) had come to a close, and there are images that will be knocking around in my head for weeks to come (and some, forever).
I begin this video with the astonishingly talented performance poet Mary Bowman, a young woman with HIV showing us her heart and soul on stage. It’s a jumping off point for this final, brief video, in which I pay tribute to the people on the front lines who are the very essence of this conference. They are the ones with the “star power.”
This opportunity to share my experiences at AIDS2012 was a distinct honor and privilege, my friends. My deepest thanks to you all for the many cross-postings and shares and tweets. This was a week I will never forget.
Enjoy the videos, and please be well.
Tags: Aging, aids, barebacking, criminalization, culture, drag, gay, gratitude, help others, hiv, physician, politics, recovery, Recreation, research, Sexuality, testing
Posted in All Other Video Postings, Books and Writings, Family and Friends, Gay Life, Living with HIV/AIDS, Meth and Recovery, My Fabulous Disease, News, Prevention and Policy | 5 Comments »
Friday, June 8th, 2012
I knew it. I felt it. It was as clear as the incessant call of crystal meth itself, on those nights when a seductive phantom of the drug cozies up to me in bed and brings its knitting.
In a Huffington Post news article on accused killer Luka Rocco Magnotta, buried in the story pages deep, a former lover says that the alleged murderer used methamphetamine, the drug popular among gay men that has claimed years of my life and left countless men in utter wreckage.
The story of the Canadian “low budget porn actor” has horrified the public with its harrowing details of torture, cannibalism, and necrophilia. The young man has been accused of killing a student, cutting him to pieces, and then mailing body parts to various locations. He allegedly consumed some of his victim and performed sexual acts with the body. He is also accused of uploading a video recording of the crime onto the internet.
Horrific, yes. But the sheer madness of the crimes, and the killer’s insane determination to make it as shocking as possible, was sickeningly familiar to a recovering methamphetamine addict like me. There is no evidence yet that crystal meth played a role in these crimes, but allow me to explain why the mix of porn, insanity and meth use struck a disturbing chord with me.
Among gay men who use recreational drugs, crystal meth abuse remains epidemic, sought for its fabled power to heighten sexual desire. In the last ten years, “crystal” has emptied nightclubs and sentenced friends to the isolation of online porn or to the emotional wasteland of “party and play” orgies frequented by fellow addicts, where syringes are common and condoms are not, and which feature exhausted, drug-driven sexual compulsives. The events have all the charm of dead bodies having sex.
Just as the drug demands more in its pursuit of the thrill of that first transformative rush, so does the sexual psyche. Before long, typical sexual behavior isn’t enough in the life of a crystal addict, and more extreme components are brought into play, such as risk and location, props and posturing, all as users experience a darkening of the sexual landscape that would cause your very soul to shudder.
In my experience, finding sexual fantasies to stimulate the weathered sexuality of meth abuse means exploring alien territory, where nothing is off-limits and the darker, the better. It becomes a perverse game of one-upmanship between addicts on the depths each will plummet for the sexual shock needed. You think about violence, one might ask the other. Fine, but have you ever thought about this? That’s hot, says the other, but what I really think about doing… is this.
Never mind that the images they are conjuring have never occurred to either of them prior to their addiction. They are mining something much darker than their authentic sexuality has ever known, all in the service of an insatiable sexual craving poisoned by a drug made with ingredients like ether, Drano and brake fluid. And so their perverse tales build and accelerate, tossed back and forth like playing volleyball with a severed head.
This is why the exploits of Mr. Magnotta set off my meth addict radar. The very outrageousness of his vile acts felt, to me, like an addict who had explored the depths of his imagination and come up short, for whom the depravity couldn’t be satisfied any longer without being made flesh. Whether his pre-existing insanity carried him across a mortal line or crystal meth pushed him over it, we don’t yet know. But meth addicts like me were shaking their heads at the accounts of Magnotta’s heinous acts and wondering why the rest of the world hadn’t suspected the connection, and why news reports hardly mentioned his crystal use as if it weren’t particularly relevant.
There are horrors that don’t arise from childhood abuse, or sociopathology or even garden variety insanity. They come from a white crystallized substance that promises everything and delivers nothing, that rewires your brain and twists your most human instincts into something that repulses even you.
Do meth addicts regularly commit murder? Of course not. But I have spent a few sleepless nights since the Magnotta story surfaced, haunted by fantasies I shared with other addicts that I had hoped to never face again.
I received a gift that too many addicts do not, the gift of finding help and taking it. Without my personal fortitude, without the trip to rehab or hitting bottom or the grace of God himself, my meth-soaked daydreams might have eventually hungered for something more intense, and beyond the safety of simple fantasy.
Instead, I have been saved, today, from what lies behind the darkest curtain. But make no mistake, I carry the burden of regrets, and they include those with a very human toll.
During the bleary days and nights of my last crystal meth relapse, I happened across a friend with whom I had been acquainted in a mutual program of drug addiction recovery. We didn’t speak of it during our few hours together, satisfied to smoke and inject meth without the intrusion of cleaner days. But being in his company vexed me. I had always ignored and denied my relapses to others in recovery and this occasion would be no different. If you didn’t see me do it, it didn’t happen. But this friend had seen, had known, and could later finger me as a liar.
If he came back into recovery, that is. And so, when considering this chance meeting of two meth users adrift, I had only one thought. One selfish, depraved and evil thought.
Maybe he won’t come back. Then no one will know about my lies.
For this addict in recovery, those who don’t come back from an extended relapse usually have met one of several possible fates, most of them dire. They may have been arrested and now face time in our horrendous penal system, or they are strapped to a gurney somewhere with serious bodily injury or a broken mind, or maybe they’re dead. To secretly hope anyone doesn’t come back from a relapse feels downright sociopathic.
What is the difference, I might ask, between taking a life outright and hoping another suffering addict continues sticking toxic needles in his arm, sentencing him to serious if not mortal consequences?
That man with whom I shared part of my relapse deserves to be in recovery – and I actually wished he wouldn’t find it. To call him my friend is a disgrace.
I might as well have cut him up into little pieces.
AIDS2012, the international AIDS conference held every two years, is next month in Washington, DC, and I’m going to make sure you don’t miss all the most colorful and inspiring parts! As I did at AIDS2010 in Vienna, I will be posting videos every day from the event. I keep the scientific reporting to the experts and instead focus on the stories of the people who make up this remarkable and massive conference. If you haven’t signed up for my email updates (above right), NOW is the time to get on board so you don’t miss the sights, sounds and personal stories that make this a truly unique event.
Thursday, March 15th, 2012
When I was nine years old, I took my parents’ album of the Broadway musical “Damn Yankees” and memorized every syllable of Gwen Verdon’s show stopper, “Who’s Got the Pain When They Do the Mambo?” Once I was satisfied with my lip-synching and choreography (I decided that a mambo was a dance in which young boys gyrated and flung themselves on and off the living room sofa), the number was ready for public display.
The premiere was a simple affair, exclusive and unannounced. Mrs. May from across the street had stopped in for afternoon coffee, and opportunity knocked when Mother busied herself in the kitchen for a few minutes.
Not a smart move, Mother, leaving Mark alone with the company.
“Mrs. May, would you like to see me do a song?” The unsuspecting woman gave a polite “yes, that sounds nice” and before Mother could run interference I had turned on the stereo and dropped the needle at the precise moment where Gwen breaks into song.
Mrs. May stared and stared, her hands folded neatly in her lap, as I brought out every sashay, twist and thrust in my dancing arsenal. My moves may have been imperfect but I vocalized brilliantly, thanks to Gwen. As I struck my final pose, arms reaching for the heavens, frozen and triumphant, I saw mother standing in the doorway, holding a plate of cookies and breathing heavily through her nostrils.
Future performances would be limited to my bedroom, where I could conjure an audience cheering with acclamation and mothers wouldn’t put you on restriction.
It is that boy, the cheerful but feminine performer, that I always feared would creep out of me as I navigated young adulthood as a gay man. I worked to shed his characteristics, to replace every soft gesture with a wooden one, to embrace the gym and tank tops and Levi jeans with the same fervor I once had for my beloved Broadway musicals, with mixed success.
And then, a lifetime later, as I worked for an AIDS agency in Atlanta in the 90’s, destiny called. An upcoming drag contest to benefit our agency was suffering from poor participation, and my boss asked if I would consider entering.
Being a drag queen, even for a night, terrified and delighted me. But the performer in me won out, wouldn’t you know, and Anita Mann was born. I created an interactive video rendition of Donna Summer’s “This Time I Know It’s for Real,” (even then, long before this blog, I was toying with the possibilities of video) and won the contest.
Soon I was performing with “the camp drag queens of the south,” The Armorettes, who hosted a Sunday night show to raise funds for AIDS organizations. Over the years they have raised over $1 million dollars, and their show was a sellout every week. But my own phobic notions lingered.
I didn’t want to be known as a drag queen (“It’s comedy! I’m a performer!” I would insist). I never appeared anywhere in drag but on that stage – I would always get dressed at the show, and was often out of drag for the final curtain call, in a bid to display whatever masculine credentials I had to offer.
I would hear other gay men make disparaging remarks about drag and I withered, unable to admit I was playing to a packed room every Sunday.
The nexus of shame and shamelessness is a complicated one. Each week I put on full display the very things about myself that I had worked so hard to reject – my femininity, my silly pursuit of acceptance through laughter and applause. And just as I gained confidence in what I was doing and why, I would lose a potential boyfriend when he learned of my weekend talents.
As a growing drug addiction encroached on my free time, I abandoned Anita Mann to its demands. For many years thereafter, Anita’s dress and wig would be relegated to a duffel bag hidden in the back of the hallway closet. I had found a vocation in drugs that offered twice the shame and every bit of the need to keep quiet about it.
It took a few years in recovery from my addiction before Anita would make her comeback. Armed with a TV set and a sense of the absurd, Anita performed at a benefit for those of us in recovery, in what may have been her finest hour. Her rendition of “Don’t Get Around Much Anymore” grows more insane by the moment, and perfectly embodied my interest in multi-media performance.
And yes, I am aware that I speak of her in the third person. Maybe it is because I view her as a character I have created, and perhaps it is the remnants of shame, and of my need to keep her at a distance.
It’s strange, how those things about which we have drawn the most shame are also able to liberate us, not to mention help others. My HIV status. My drug addiction. My drag personality. As I have embraced each of these, I’ve found self-acceptance and a way to carry a message of hope, and even joy, to others.
Anita Mann limits her performances these days to recovery related engagements. It seems fitting that these two aspects of my life, both once secretive, have found their place together. Anita has a voice now as well, doing a sort of recovery stand-up and even singing live when the occasion permits. Anyone in recovery might enjoy watching the highlights of her recent stint at the Crystal Meth Anonymous conference in Atlanta, which includes her bittersweet rendition of “Happiness is…”
Meanwhile, I still struggle with the need to project as much masculinity as I can muster. I swagger more than I sashay. I sport a beard when possible. And I work to maintain a strict gym regimen.
It’s important for me to stay in shape if I expect to fit in that dress.
The HIV Cruise Retreat is going to be sold out early this year, because the cruise ship, unlike previous years, is taking back unsold cabins from the cruise organizer that are not sold within the next week. In years past, cabins for our group could be sold much closer to departure. This is probably due to the popularity of the Halloween voyage, and it means you must act now to get a spot. I love this event. Contact Paul Stalbuam at 888-640-7447 or visit www.HIVCruise.com.
Tags: acting, culture, drag, gay, help others, hiv, meth, recovery, Recreation
Posted in Anita Mann and Acting Gigs, Family and Friends, Gay Life, Meth and Recovery, My Fabulous Disease | 9 Comments »
Thursday, February 23rd, 2012
The image in my mind has never left me, even after many years of trying, of applying layers of wallpaper to that corner of my mind. I am in someone’s bedroom — it could have been anyone, really — and I am offered a syringe to inject crystal meth. The syringe has been used. I take it. I consider the consequences for a brief moment, but I am cavalier. And very, very high. I use the syringe.
It wasn’t the threat of HIV that gave me pause. It was hepatitis C, which I knew was serious… and that’s about it. But I can tell you this, now, my friends: More U.S. residents are now dying of hepatitis C complications than HIV-related illnesses, as reported recently by Tim Horn in Hepatitis News.
Within days of using that syringe, maybe two weeks, I become horrifically ill. The acute infection swept through me like a freight train, exhausting me, turning my urine brown, making it impossible to perform routine tasks. Doctors diagnosed it quickly, and then gave me the grave treatment plan: 11 months of interferon, coupled with ribavirin. The interferon, a ferocious chemotherapy, would cause mood swings, deep depression, and would be administered, ironically, by injecting myself with it each week.
Depression is so severe among interferon patients that they do not allow pilots to fly who are being treated with it, for fear they will deliberately crash the plane.
The months I endured with hepatitis C and the treatment protocol remains the worst period of health in my life. The mental side effects were as devastating as the illness. Everything hurt. Everything made me angry. Or want to cry. Or convinced me you were against me. Those eleven months crawled by without mercy.
The good news, thank God, is that the treatment plan worked, and I cleared hepatitis C from my body. There has been no recurrence.
I’ve said that the disease most likely to kill me is addiction, not HIV, and hepatitis C was a terrible by-product of my addiction.
While I am drug-free today and maintaining good health, the report that hepatitis C has overtaken HIV as a cause of death brought up some strong emotions. It reminded me of the insanity of the interferon treatment, and then, of course, the insanity of my drug addiction. And it made me wonder how many of those who are dying of hepatitis C acquired it the same way I did.
My life is filled with unlikely rescues. To have lived with HIV for thirty years and to be here typing on my laptop is amazing. To have thumbed my nose at that fact, and reward my good fortune by sticking needles in my arm, well, that is as alarming and sad to me as it must be to you. It’s tough to feel worthy of the grace that has saved me, again and again. So I’ll simply be grateful to be clean and alive today.
Get tested for hepatitis and get the vaccine for A and B if you have not already been exposed. And should you be an injection drug user, bring your own clean needles where ever you use. You and I both know that, when the choice is a used needle or getting high, all of our good fortune can disappear in a flash.
p.s. May I sneak back on my HIV criminalization soap box for a moment? (My face-off between a poz man and the sex partner accusing him of not revealing his status has garnered some interesting comments, and the attention of advocates worldwide.) If 26 U.S. States have laws criminalizing the potential exposure of HIV to another person, than why don’t they have laws against exposing someone to hepatitis C, which is now officially more deadly than HIV? Thank you. That will be all.
On a ridiculously different note, may I say with some pleasure that I always win the Oscar pool. If you are headed to an Oscar party this weekend, by all means, listen up! Here are my predictions. I am including the “little” categories because that is how you rack up points! If you must vary from my experienced guesses, be forewarned: you never win the Oscar pool by going with your passions. This is a game of politics and timing.
BEST PICTURE: The Artist. The Descendants had great momentum earlier this year until this adorable gem appeared. The statue has already been engraved.
BEST DIRECTOR: Michel Hazanavicius (The Artist). Your first lesson: when in doubt, choose whatever nominee is attached to the clear Best Picture winner.
BEST ACTOR: George Clooney (The Descendants). George has a supporting statuette already, but the Academy loves the man, and so do I. He will edge out the leading actor from The Artist, who’s name I don’t feel like looking up and spelling out.
BEST ACTRESS: Viola Davis (The Help). Even Meryl wants her to win, for God’s sake.
BEST SUPPORTING ACTOR: Christopher Plummer (The Beginners). Mr. Plummer, in a cozy role in a slight film, benefits from the George Burns rule: give it to the old guy with a long history. And he made a nice acceptance speech at the Golden Globes, which Academy voters see as auditions.
BEST SUPPORTING ACTRESS: Octavia Spencer (The Help). This early favorite of a film will sweep the actress categories. Good for them.
BEST SCREENPLAY: Woody Allen (Midnight in Paris). The more he demurs, the more they love him.
BEST ADAPTED SCREENPLAY: Alexander Payne (The Descendants). A terrific film and a deserving win.
BEST SOUND EDITING: War Horse
BEST SOUND MIXING: Hugo
BEST MAKEUP: The Iron Lady (closely followed by Albert Nobbs).
BEST DOCUMENTARY SHORT: Saving Face
BEST DOCUMENTARY FEATURE: Pina
BEST ANIMATED SHORT: La Luna (Pixar gets its first short-form Oscar in over a decade).
BEST LIVE ACTION SHORT: The Shore. I actually saw these nominees, and would strongly favor Raju from India, but The Shore has bigger names (and influence) attached.
ANIMATED FEATURE: Rango. Surely the most bizarre film to win an Oscar this year. Johnny Depp is smiling.
ART DIRECTION: Hugo
CINEMATOGRAPHY: The Tree of Life. Terrence Malick, the mysterious and cultish director, started as a camera man and his shots still make the Academy swoon.
COSTUMES: Hugo (which will rack up some of these techy categories since it won’t win anything big).
EDITING: The Artist
FOREIGN FILM: A Separation. A brooding, surprising domestic thriller.
SCORE: The Artist
SONG: The Muppets
SPECIAL EFFECTS: Rise of the Planet of the Apes
Enjoy the show! Good luck, Billy!
Tuesday, December 13th, 2011
My mother’s home here in Shreveport, Louisiana, was fraught with excitement last week. Christmas decorations littered the living room, the almond scent of cookies filled the air, and last minute phone calls and arrangements made it all feel like a major production was underway.
And there was. The event that had everyone scrambling was held on a Sunday afternoon, when siblings and extended family arrived for the taping of The ‘My Fabulous Disease’ Holiday Spectacular.
Now just take that in for a moment. My family was enthusiastically participating in a video about my life with HIV. And they were much more concerned with choosing a fun holiday outfit than being publicly associated with their HIV positive relative. For them, sitting down for an interview about my HIV status, well, that was the easy part. They had no problem being candid about my HIV, as you will see.
I am an extremely blessed and fortunate man.
When I was young, I remember watching “The King Family” on television (right), a big happy bunch that sang really well and wore lots of matching outfits. I was starstruck, and always wondered if that King family might bear some relation to mine. And if they didn’t, would they let me come be on their show anyway?
Well, today, I’m proud of my own family for displaying our dubious talents, and by going a big step further by discussing the importance of supporting those of us living with HIV/AIDS. For far too many, the difficulty in disclosing our status — or the result of doing so — has distanced them from the people they need most during times of challenge.
The Holiday Spectacular includes some family greetings, a cooking segment with Mom (you’ll want that divine almond scent wafting through your home, too), some holiday drag, a surprise here and there, and even an appearance by the big man himself, Santa Claus.
You may remember my mother from “What it Feels Like for a Mom,” a bracingly honest video created for Mother’s Day. You might also remember my gay brother Dick, who made an It Gets Better video with me. He was also one of the main subjects of the award winning “Once, When We Were Heroes” posting I made for World AIDS Day several years ago. But today, you’re also going to meet sisters, nieces and in-laws who have special holiday greetings just for you.
Enjoy the holiday special, my friends. I hope you’ll share it with anyone that could use some holiday cheer, or needs a reminder that they are loved. And as always, please be well.
p.s. As promised in the video, here is the recipe for Mom’s Christmas Cookies. I’m certain they’re fantastic for your t-cells.
(Note: Mother uses a MIRRO Food Press, a device that must have been manufactured during the Eisenhower era, judging from the faded instruction manual she still keeps handy. I found one on E-Bay for you for less than four bucks, or you can use a more modern appliance, if you must. I don’t guarantee the cookies will taste the same!)
Time: 10-12 minutes… Temp: 375F… Yield: 7 dozen
1 cup shortening
3/4 cup sugar
1/8 tspn salt
1/4 tspn baking soda
1 tspn almond extract
2 1/4 cups sifted flour
Green food coloring
1. Cream shortening, adding sugar gradually
2. Add unbeaten egg, dry ingredients, flavoring, and a few drops of food coloring. Mix well.
3. Fill the cookie press and form cookies on ungreased sheet. Sprinkle with sugar and bake.
4. Frost and sprinkle something fabulous on top of them (this is Mom’s provocative departure from the original recipe. That’s just how she rolls.).
Tags: aids, culture, drag, family, gay, gratitude, help others, hiv, recovery, Recreation
Posted in Anita Mann and Acting Gigs, Family and Friends, Gay Life, Living with HIV/AIDS, My Fabulous Disease | 21 Comments »
Tuesday, December 6th, 2011
Remember when we were little, and if we wanted something we simply asked for it? It felt easy. It seemed natural. And if there was really something special we had to have, there was a golden opportunity every year to ask the person who made all things possible. Santa Claus.
But then we got older, and life became more complex, and we were told it was better to give than to receive. Asking for what we wanted felt selfish, and many even a sign of weakness.
I wish we could look at this differently. Admitting we want something can be liberating. It acknowledges we are human, and there is grace, beauty even, in revealing our need and being vulnerable and allowing someone to help us.
Just because we don’t ask for toys anymore doesn’t mean we don’t want anything. We want friendship. We want to be accepted. We want our health. Maybe it’s asking a friend to listen, or wanting a medication with fewer side effects.
Just saying, I need this. I want to feel better. Or, I need you.
Wanting is not limited to children, my friends. But we might take a lesson from their transparency. Sometimes the answer, the help we need, the gift waiting for us, will only appear when we take a chance, when we finally have the courage to ask for what we want.
Happy holidays, and please be well.
(I don’t think I’ve ever been more excited about a video blog than the one premiering here next week: The “My Fabulous Disease” Holiday Spectacular! A dozen of my relatives have come together to bring you comedy, Christmas cookies, a little drag, a visit from Santa — and some very candid feelings about loving a family member with HIV/AIDS. I hope you’ll come back next week and meet the family! — Mark)
A word, if I may, about my recent posting “The Long Road Home from Relapse,” which managed to break traffic records on my blog, generate amazingly supportive comments, and also became its own source of concern among some of my fellows in recovery. As a few of the comments suggested, my drug relapse was a serious event that even I may not fully appreciate just yet, much less be able to distill its lessons to my readers. Some felt that writing about it so soon after the fact seemed cavalier. I’d like to say that my actual recovery process — the work I do on a daily basis to rebuild and maintain a clean and sober life — involves many things that are completely unrelated to my writing. It is ongoing and intimate and I take it very seriously. I considered withholding the relapse from my blog, but it just felt dishonest not to talk about it. My point is, there is work ahead for me that I hold dear and will keep to myself, my sponsor and my God. As Tony Kushner writes in the last line of Angels in America, “the great work continues.”
The madness continues of criminalizing those with HIV who do not (allegedly) reveal their HIV status to their partners, and new cases are piling up around the country. These include many prosecutions in which protection was used and no transmission occurred. But only now have we been able to hear the voices of those who have experienced this Kafkaesque nightmare. In his upcoming documentary “HIV is Not a Crime,” AIDS activist and writer Sean Strub gives voice to the “criminals.” Their stories are riveting and heartbreaking, like that of Nick Rhoades, right. You can view a terrific trailer on YouTube, and I dare you not to let it make your blood boil, positive or not. I urge you to take a look and get educated on what is becoming a defining HIV issue for our time.
Did you catch all the media attention last week stating that people with HIV aren’t taking very good care of themselves? Oh yes indeedy, the news reports, with headlines like Few in US with HIV have virus under control, and HIV Out Of Control In US Patients, seemed to suggest that it was people living with HIV who somehow haven’t been doing the right thing to maintain their health. And that’s a load of hooey, as my dad used to say. It turns out that the reports were misrepresenting a new CDC study showing that less than half of HIV patients have access to proper treatment. As in, not their fault. This distinction was made in an eye-opening blog posting by Housing Works, in which the actual study vs. the media reporting is clearly explained. “We are facing major budget cuts in homeless services, housing, testing and prevention,” blogger Kenyon Farrow states. “These all prevent people with HIV from staying healthy and make many more people vulnerable to infection… By focusing media scrutiny on government officials, the public would be better informed about who’s really ‘out of control.’”
The Windy City Times continued a remarkable year-long commitment to covering AIDS this week, which is really a story in itself — a gay paper intent on maintaining visibility of the crisis in commemoration of the 30-year milestone. So I am especially excited that the paper chose to run a profile about My Fabulous Disease as part of their World AIDS Day coverage. Writer Joe Franco, intrepid journalist that he is, took the time to both interview me and actually watch most of my videos, if you can imagine. In his piece he manages to discuss AIDS, community, comedy, drug addiction and drag. In other words, it’s a fair representation of what you get around here on a regular basis. My mom loved it.