web analytics
rss feed

Act against Aids

The Body

poz.com

crystalmeth.org

trialreach.com/



hivcruise.com

March 24th, 2013

Behind the Scenes of the Video Series “A Day in the Life”

I have some amazing friends for you to meet.

Beginning two years ago, TheBody.com asked me to produce a series of videos (“A Day in the Life: Keeping Up With Your HIV Meds”) that would profile a person living with HIV, what their day looks like, and how their medication regimen fits into their daily routine. It was a great opportunity to highlight the everyday lives of people living with HIV, but also to let their spirit and passions come through, and show we are whole people — not simply the virus.

The profile subjects came from all walks of life, in various cities around the United States, and their personalities and interests — their families, their hobbies, and even how they became HIV positive — were all I needed for inspiration.

Below are the eleven videos that have been produced to date for the series (an ongoing feature on TheBody.com and they also have an entire resource center about keeping up with your meds). You can watch the videos here, or follow the link in the title to view the post as it appeared on TheBody. They are each less than ten minutes long; just scroll through them below and find a story that sounds like yours — or better yet, hear what the journey of someone completely different from you is like! Are you ready?

Episode 1: Damaries Cruz

Damaries is from South Florida and could not have been more lovely; we laughed a lot during our day together. Her strength is what impressed me most: she did not come to the decision to start HIV medications lightly. She really did her research before she began a regimen. Filming her story was also a great excuse to hit the beach, since she loves to find her peace and tranquility on that gorgeous sand.

Episode 2: Tree Alexander

Well, first of all, Tree is adorable. So there’s that. He also has an equally adorable dog, who tried mightily to extend his few minutes of fame by sneaking into the camera shots and barking woefully from the other room. For his part, Tree does a great job explaining how he kept his medication regimen despite multiple moves and even being homeless for a brief period. I really like the Brooklyn montage of Tree’s neighborhood at the beginning of the video.

Episode 3: Eva Hansen

What an elegant woman Eva is. She was so gracious during our day together and had an almost regal sense of self. She really impressed me. Not only did she make peace with the man who infected her many years ago, she became an advocate for all women living with HIV and devoted quite a lot of time to volunteer work. She’s also an avid traveler — I’ve never seen so many magnets from exotic places on one fridge in my life.

Episode 4: Robert Darrow

What a hoot! Robert (Bobby) Darrow and I were childhood friends, when we both performed in community theater together in Shreveport, Louisiana (we were both newsboys in Gypsy, for all you musical theater queens). As we grew, he always got the good parts and I ended up working the spotlight — shining it on him — but I’m not bitter, I swear! Producing this video was a great chance to honor my lifelong friend for the activism he has done since the beginning of the AIDS epidemic. And it also allowed me to honor theater itself, and how Bobby is now back in the very place he and I so loved when we were kids. This one is special to me.

Episode 5: Brooke Davidoff

You’re going to be blown away by the strength of this woman’s convictions — and the strength of her marriage. Brooke learned she was HIV positive during her pregnancy, and not only was her husband completely supportive, he stood by proudly as Brooke became a visible advocate for woman’s health, the importance of HIV testing, and their personal struggle to afford HIV medications so that their baby would have a better chance of being born without HIV. And speaking of babies, guess who steals the show in this video?

Episode 6: Khafre Abif

Khafre was one of the most immediately spiritual people I met during this series. He has a very strong sense of faith and a commitment to his own spiritual principles. He was also in the midst of organizing a fund raising bike ride across the country to benefit HIV/AIDS services for people of color, and I admired his dedication and pure energy. The time he devoted each day to prayer and meditation was really lovely to observe and capture in the video.

Episode 7: Petra Berrios and Efrain Carrasquillo

Petra & Efrain could give the other couples in the series a real run for their money for the title of Most Romantic. You can’t help but grin, watching Efrain describe seeing his future wife for the first time at an AIDS conference, where both were community advocates and both were living with HIV. They not only lift up one another during the frustrations of HIV life, they know how to take time to love and enjoy one another, as their salsa demonstration clearly shows.

Episode 8: Fortunata Kasege

Tales of triumph over adversity don’t come more dramatic than the story of Fortunata. Not only is she the single, proud parent of a gorgeous daughter (the apple doesn’t fall far from the beauty tree), she had a devastating accident when she was hit by a car walking across the street — and then had to manage her HIV meds along with a host of others while she recuperated. The fact that she relates all this with such grace was amazing to me. I had so much footage of her simply looking ethereal and lovely, the video could have been twice as long.

Episode 9: Nelson Vergel

Anyone who follows my blog — or HIV/AIDS advocacy — knows what a gift Nelson is to our community. He’s been our own Jack LaLanne of HIV, teaching the importance of health, exercise and nutrition since the beginning of the epidemic — the video blogs he did with me on nutrition (where he cleans out my fridge) and exercise (where we hit the gym together) are hilarious and very informative. And, of course, he has a hot body. It might come as some surprise, then, that he’s very modest when it comes to showing it. I had all sorts of shots and angles I wanted to do that would have shown of his physique, and he politely demurred. He also was always focused in our interview on what would apply to regular folks living with HIV, rather than the more privileged among us. In other words, the man is a class act, with a humility that speaks volumes about his integrity and commitment.


Episode 10: Robert Breining

I’ve been watching Robert grow as an HIV/AIDS advocate for several years now, since he began POZIAM social network and radio show while still in his twenties. I had fun doing the fast cuts that open his video because I thought it captured the sense of motion and vitality he has. When I become disheartened, wondering where are the next generation of activists on the scene, I remind myself there are people like Robert.

Episode 11: George Burgess

I’ve always been open on my blog about being in recovery from drug addiction, and George — who survived 27 years of street drugs — and I had an immediate connection. He devotes his life today to service for others, whether it is at an AIDS agency or through various addiction activities. In fact, something he said about his recovery during our interview really made sense to me, and I stopped the camera and shared some of my own story. For nearly thirty minutes he let me pour out some of my own fears and challenges, and listened with the attention of a man who has been there. I think his spirit is well-represented in this video.

To watch George’s video, just follow this link to TheBody. This video is so hot-off-the-presses that I’m not able to share it here yet. Follow the link and hear his story.

I learned a lot of each of these people, and I know they represent a tiny fraction of the courage and daily fortitude displayed by people living with HIV every single day. I really want to thank this group for taking me into their homes and lives and allowing me to share their stories with you.

Thanks for watching, and please be well.

Mark

Tags: , , , , , , , , ,

One Response to “Behind the Scenes of the Video Series “A Day in the Life””

  1. Jonathan Says:

    April 15th, 2013 at 2:08 am

    Hi Mark,
    I just finished “A Place Like This”; what a great find! I stumbled across it via a recommendation to your blog from another HIV site. I devoured the book in 2 days! A poignant mix of hard won insight, the unimaginable horror of living through the pre-ARV days of the epidemic mixed with a sexy and funny memoir; I was at turned moved to tears, laughter and reminiscences of my own from my first days in San Francisco during the late 90’s.
    Reading your blog, I admire the activist and awareness work that you are doing. I was diagnosed with HIV in 2004, so I have a different perspective on the epidemic and though I just missed the generation that buried many of their friends (I arrived onto the scene in 1996, right before the first cocktail emerged), it has still served as a backdrop to my entire life and has led me on a harrowing but meaningful journey. WHen I was diagnosed, I took all the HIV stigma I perceived and piled it on top of myself, nearly crushing my life. I hid my secret from my family and most of my friends for 2.5 years until a cancer diagnosis and a year of chemo and recovery led me to realize that my coping strategy was not serving me or anyone else. To cut to the chase, I came out as positive, started studying nursing and am now 8 weeks shy of graduating from UCSF as a nurse practitioner with a specialty in HIV. I run a long term survivors group that is a mixture of qi gong, discussion group and art therapy. It has been a great journey for me.
    I wanted to thank you for your words and ask if you had any ideas as to how I could better use my story to serve and inspire others. I am now happy and healthy–and I hope that you continue to be so as well. I would love a sequel!

Leave a Reply



  • « Older Entries
  • Newer Entries »