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My Fabulous Disease

05 22, 2019

I Left My Hospital Bed to Make an HIV Event. What Self-Care?

By |2019-05-23T08:09:12-04:00May 22nd, 2019|Gay Life, Living with HIV/AIDS, My Fabulous Disease, News|0 Comments

"It's 3:00am and I have a plane to catch in the morning, people." Fainting is weird, especially the third time it happened during one weekend. By that time, I knew enough to grab a safe spot – the front steps of the house, I had been admiring the blooms in the courtyard – [...]

05 17, 2019

Behind-the-Scenes Photos from the House Hearing on PrEP

By |2019-05-17T07:05:30-04:00May 17th, 2019|Gay Life, Living with HIV/AIDS, My Fabulous Disease, News, Prevention and Policy, Trump|0 Comments

On Thursday, May 16, 2019, the House Oversight Committee conducted a hearing to try and get to the bottom of the Truvada pricing and patent scandal. They were not messing around. The title of the hearing was, “HIV Prevention Drug: Billions in Corporate Profits after Millions in Taxpayer Investments.” The hearing was the culmination of [...]

05 10, 2019

Five Reasons the Gilead Giveaway is a Steaming Pile of Truvada

By |2019-05-11T12:31:23-04:00May 10th, 2019|Living with HIV/AIDS, My Fabulous Disease, News, Prevention and Policy, Trump|0 Comments

  Gilead Sciences, the pharmaceutical that makes Truvada, the only FDA-approved drug for PrEP, is having a great week in the public relations department. First, Gilead announced they were surrendering their patent for Truvada a year early, and now Federal officials have announced that Gilead will donate enough Truvada for 200,000 people in the United [...]

04 29, 2019

A New Book Applauds the Straight Women of HIV History (Finally, right?)

By |2019-04-30T07:51:14-04:00April 29th, 2019|My Fabulous Disease, News, Prevention and Policy|0 Comments

Krishna Stone, one of the many women profiled in the book, Fag Hags, Divas and Moms: The Legacy of Straight Women in the AIDS Community. My first job in AIDS in the 1980s was at the Los Angeles Shanti Foundation, an organization that provided companions for the dying. When our founding director, Daniel [...]

04 23, 2019

These Drag Queens are Anal About Their Health

By |2019-04-23T18:56:54-04:00April 23rd, 2019|Anita Mann and Acting Gigs, Gay Life, Living with HIV/AIDS, My Fabulous Disease, News, Prevention and Policy|0 Comments

I’m a Southerner, first and foremost. We love beauty pageants and drag queens.  So, the new video series Anal About My Health is right up my (ahem) alley. Produced by MPACT (Global Men’s Health and Human Rights), the cheeky series is based on the actual life experiences of several Bay Area drag personalities. In each [...]

04 6, 2019

All Aboard the 2019 HIV Cruise Retreat!

By |2019-04-06T09:19:16-04:00April 6th, 2019|Family and Friends, Gay Life, Living with HIV/AIDS, My Fabulous Disease, News|0 Comments

This November, the HIV Cruise Retreat (also known as “the Poz Cruise,” although it is not associated with POZ Magazine) will celebrate its 15th Anniversary voyage with a cruise to the Caribbean from Ft Lauderdale. As the host and MC, I can’t wait to join them. Grab a floppy hat and some sunscreen and come [...]

04 2, 2019

AIDS WATCH: ‘Strong Interest’ in Hearings on Truvada Patent Profits

By |2019-04-02T17:42:04-04:00April 2nd, 2019|My Fabulous Disease, News, Prevention and Policy, Trump|0 Comments

James Krellenstein and Nicholas Faust of #PrEP4All at AIDS Watch in Washington, DC Advocates pressuring the Centers for Disease Control and Prevention (CDC) to claim royalties from sales of ‘Truvada as PrEP’ report “strong interest” in congressional hearings on the growing controversy, based on visits to the Hill today between HIV advocates and [...]

03 30, 2019

AIDS WATCH: Why is the CDC Withholding Billions in PrEP Profits?

By |2019-03-30T11:25:38-04:00March 30th, 2019|Living with HIV/AIDS, My Fabulous Disease, News, Prevention and Policy, Trump|0 Comments

  You are going to read this story and think it is too outrageous to be true. You would be wrong. And, especially if you are an HIV advocate attending AIDS Watch in Washington, DC, this week, you must demand that our elected officials answer for it. Here’s the story, and some simple questions for [...]

03 26, 2019

Finding Redemption on the ‘Ride for the Feast’

By |2019-03-26T15:25:44-04:00March 26th, 2019|Living with HIV/AIDS, My Fabulous Disease, News|0 Comments

Angie Kelley of Moveable Feast Angie Kelley found her redemption on a bicycle, somewhere along the 140-mile route of Ride for the Feast, the annual fundraiser for Moveable Feast. The arduous trail transformed a young woman with a troubled past into something entirely new.  A queer advocate. A mother. A woman of worth. [...]

03 21, 2019

Steve Pieters is the Very Model of a Medical Anomaly

By |2019-03-21T09:29:15-04:00March 21st, 2019|Family and Friends, Gay Life, Living with HIV/AIDS, My Fabulous Disease|0 Comments

Brace yourselves, Gilbert & Sullivan fans. The Rev. Steve Pieters has a treat for you. Steve is a long-term survivor – and by long, I mean since before 1985, when HIV/AIDS was known as Gay Related Immune Disorder (GRID). Steve has been an advocate of many decades for both HIV causes and for the religious [...]

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