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August 2nd, 2011

I’m Gonna Wipe That AIDS Right Off of My Face

Several years ago, I told someone that I was HIV positive before I agreed to his invitation for a date. “Yeah, I know,” he casually replied, and then he looked a little embarrassed, as if he shouldn’t have said it. It was too late, of course; I knew exactly what he meant. He knew my HIV status because of the appearance of my face.

I was crestfallen, and felt something close to shame, certainly embarrassment. Why is it that I can produce this blog, proudly march with HIV POSITIVE on my t-shirt in gay parades, and even write a book about coming of age during the dawn of AIDS — but I get upset if someone can tell I’m positive by how I look?

When I choose to disclose, privately or publicly, it’s on my terms. I choose how and when to tell you. I want you to know.

Facial wasting (known as lipodystrophy) takes that choice away. It’s as if the disease is intruding, is taking the upper hand somehow, and worse, taking away my decision about when and to whom I disclose my status. And as much as I want to claim “Most Out Poz Guy Ever,” I don’t like wearing HIV across my face.

lipo face shotMost of us know “the look.” It’s the telltale gullies and sunken cheeks associated with longtime HIV infection or (more likely) medications (right). Many of my friends and colleagues in this struggle suffer from it, and they may either be comfortable with it, proud of it as a badge of honor, or simply resigned to it. I salute us all, whether our features tells our HIV story or not. But meanwhile, I’ll do what I can to wipe that shit off my face.

BlogFrameGrab1 - CopyA few years ago I visited Dr. Gerald Pierone in Vero Beach, Florida (regarded as the leading expert in fillers and one of the Ask the Experts team at TheBody.com), and I documented that first visit and my facial filler treatments in a video blog, Treating My Facial Wasting (left). In that video I focused on my own attitudes — Was I ashamed? Trying to look younger? Simply vain? — and on the procedure process itself. Nearly a year later I revisited Dr. Pierone and got another treatment and documented it in my video blog, A Facial Wasting Update.

In this video episode of My Fabulous Disease, I revisit Dr. Pierone for a new treatment with the facial filler products Sculptra and Radiesse. While I’m there, I learn enough about Artefill, the only FDA approved permanent facial filler, to make me strongly consider the product the next time my face needs fluffing.

This video also focuses on very specific information about the actual costs of facial filler treatment. Both Sculptra and Radiesse have patient assistance programs that significantly reduce the cost of the medication, but you still need to pay the physician to do the procedure, and that price can vary. TheBody.com has a great article that outlines all the facial filler choices and how much they cost.

Tip: don’t allow any street corner vendor (or gym or even doctor office) to inject stuff into your face. Do some research and above all, find a physician who has done this many, many times (over 500 would be a good start). Be a smart shopper and empowered patient and ask about their experience level first.

I hope you find the video helpful and that you aren’t too afraid of needles!

In the meantime, my friends, please be well.

Mark

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PLUS…

SLOW 2Compelling, sexy, and courageously paced, the short film “SLOW” by filmmaker Darius Clark Monroe is worth your time. In 13 minutes, the film takes two African-American men on a sexy journey in which one of them discovers that the fast way (to sex, to real intimacy) isn’t the only way. If you are working with MSM outreach, this is a wonderful discussion tool. If you appreciate confident film making with a gay theme, this is it. Director Darius Clark Monroe told me he had nothing to add to the film’s message: “everything I wanted to say is expressed in the work…” and indeed it is. The video is NSFW, due only to brief nudity, but otherwise this flick wants to stimulate you mentally much more than by parading naked men around — a lazy tactic employed by most gay films today. I hope you’ll check it out!

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4 Responses to “I’m Gonna Wipe That AIDS Right Off of My Face”

  1. Phyllis Fears Says:

    August 2nd, 2011 at 10:20 pm

    Hello Mark,
    I do a lot of public presentations educating people about STD/ HIV. I’ve experienced a lot of resistance possibly due to the visible signs of my status. Currently, I take Trizivir and doing very well. My TCell count is over 900 and Viral Load continues to be <20. My question: Do you know of any extreme makeovers that could gain by sponsoring me to have a facial make over. I have the fat under my chin and my neck appears thick. How much does the lipodystrophy treatment cost? Do you pay for them or get sponsors?
    (I use patient assistance programs to pay for most or all of the cost of the Sculptra and Radiesse. That leaves the cost of the actual injections, and physician costs vary but many have sliding scales. Always ask. The more permanent filler, Artefill, does not have a patient assistance program because it is FDA approved for cosmetic use, not for the treatment of lipoatrophy, which makes it expensive. — Mark)

  2. Mario Says:

    August 3rd, 2011 at 9:07 am

    Once again, Mark, thank you so much for this report on facial lipoatrophy. I have already gone through two Sculptra sessions (4+4) two years apart. I am now one year out after the second session, and not ready for a third. I am very happy with my results as it does take that “aidsy” look out of my face. Most likely next year I’ll be ready for a third session and would be most interested in this new semi-permanent product that you mentioned in this video. If you could write a post about that, I would greatly appreciate it … after all, that’s how we find out what’s available … by sharing with each other our experiences. Thanks again for your great report!
    (I love that expression — “Aidsy.” Anyway, it looks like I’ll be doing the Artefill soon and I’ll be sure to let you know all about it! — Mark)

  3. Luis A. Ramos Says:

    August 26th, 2011 at 12:25 am

    Wow Your Great!

  4. Jonathan Says:

    September 9th, 2011 at 3:15 pm

    An awful lot of ‘product’ in your bathroom, Missie….
    Well-done!

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