“We condemn attempts to label us as ‘victims,’ which implies defeat, and we are only occasionally ‘patients,’ which implies passivity, helplessness, and dependence upon the care of others. We are ‘people with AIDS.’”


“We condemn attempts to label us as ‘victims,’ which implies defeat, and we are only occasionally ‘patients,’ which implies passivity, helplessness, and dependence upon the care of others. We are ‘people with AIDS.’”

Negotiations between myself and POZ Magazine were heated, I will admit. First they claimed Leibovitz was busy and Scavullo was dead, and then they rejected my request for body painting at the studio to sculpt my abs. Oh, and I had to wear a shirt.

In a final act of staking my claim, I asked the damp, drunk and spent star to scribble “All my best, Rock Hudson” on a piece of notebook paper before his hasty exit down the duplex stairs and out to the dingy street below.
I was knocked out by these people and their daily courage and fortitude. I really want to thank this group for taking me into their homes and lives and allowing me to share their stories with you.

What, then, is the responsibility of LGBT media in this climate of rising infection rates and a bored readership? Do they have a responsibility to serve as advocates for better public awareness?

My dismay over my facial wasting pitted two strong emotions against one another: my pride in being a longtime HIV/AIDS survivor, and my shame for looking like one.

When legendary AIDS treatment activist Spencer Cox died on December 18, 2012, the cause of death was AIDS-related complications, which is understandable if post-traumatic stress, despair, and drug addiction are complications related to AIDS.

Don Lemon, who remembered our first visit and never mentioned the circumstances, who knew this interview meant growth for me, a sort of redemption perhaps, and who even knew a little about overcoming shame himself, reached out in a simple gesture of support.

Kearns’ story includes a bizarre intersection between us that I found so revelatory and disturbing that I had to actually put the book down for several days while I reexamined an entire section of my life.

All of the six video blogs produced by “My Fabulous Disease” during AIDS2012 (the international AIDS conference) in Washington, DC, July 21-27, 2012.

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